When diagnosed with a rare disease, patients can find hope by connecting with people who understand their experience. Many patient-centered organizations address this need by providing community, education, and advocacy for those affected by specific diseases. One example is the IgA Nephropathy Foundation (IGAN), an organization dedicated to finding a cure for IgA Nephropathy (IgAN). Iowans recently gained IGAN representation in Jessica (Jing) Danielson, a clinical research coordinator at University of Iowa Health Care. Danielson will serve as the first IGAN ambassador in both Iowa and the Philippines, spreading awareness about IgA Nephropathy and the resources available to those it impacts.
Source: https://internalmedicineiowa.org/
Budget-Friendly, Kidney-Healthy Meal Planning: A Cost-Effective Guide for IgA Nephropathy
