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About Us
IGAN Foundation
WHAT IS IGA NEPHROPATHY?
Our Partners
Our Sponsors
Leadership Team
Board of Directors
Medical & Scientific Advisory Board
SPARK 2023
IgA Nephropathy Day
For Patients
Become a Member
APPLY FOR PATIENT AID
IgA Nephropathy Guide
FAQs
Peer Support Resources
Archive
Spark 2020 Archive
Spark 2022
Clinical Trials
Resources
IgAN Risk Quiz
IgA Nephropathy Guide
Responsum Health
IgA Nephropathy Studies
IgA Nephropathy Research
Tracking Your Treatment
Navigating IgA Nephropathy Treatment Decisions
PREPARING FOR DIALYSIS / TRANSPLANT
Published Research Articles
Donate Life Series
Join Our Efforts
Ambassador Program
Contact Us
Fundraising
Store
My Account
Cart
Checkout
Orders
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BECOME A MEMBER
☰ MENU
About Us
IGAN Foundation
WHAT IS IGA NEPHROPATHY?
Our Partners
Our Sponsors
Leadership Team
Board of Directors
Medical & Scientific Advisory Board
SPARK 2023
IgA Nephropathy Day
For Patients
Become a Member
APPLY FOR PATIENT AID
IgA Nephropathy Guide
FAQs
Peer Support Resources
Archive
Spark 2020 Archive
Spark 2022
Clinical Trials
Resources
IgAN Risk Quiz
IgA Nephropathy Guide
Responsum Health
IgA Nephropathy Studies
IgA Nephropathy Research
Tracking Your Treatment
Navigating IgA Nephropathy Treatment Decisions
PREPARING FOR DIALYSIS / TRANSPLANT
Published Research Articles
Donate Life Series
Join Our Efforts
Ambassador Program
Contact Us
Fundraising
Store
My Account
Cart
Checkout
Orders
Ambassador Program Application
IgA Nephropathy Foundation Ambassador Program
Application
Name
*
Street
City
State/Province
ZIP / Postal Code
Mobile #
Home #
Email Address
*
1. Date of Birth
*
2. What is the highest degree or level of school you have completed?
*
Some high school, no diploma
High school graduate, diploma or the equivalent (for example, GED)
Trade/technical/vocational training
Associate degree
Bachelor’s degree
Master’s degree
Doctorate degree
3. How long ago were you diagnosed with IgA Nephropathy?
*
Within the last 1-2 years
Within the last 3-5 years
6-9 years
10 years or longer
4. Which best describes you:
*
Someone living with IgA Nephropathy
Someone caring for someone with IgA Nephropathy (If you are a caregiver, please answer the next few questions based on the person who has IgA Nephropathy)
Other
Other
5. What is the current stage of your kidney disease?
*
1
2
3
4
I’m not sure
6. What steps have you or are you taking to manage IgA Nephropathy? (Please check all that apply.)
*
Taking medications
Tracking and managing your blood pressure
Watching salt (sodium) intake
Cutting back on alcohol
Being physically active, moving my body more
Managing stress levels
Treating other conditions, such as diabetes or high cholesterol
Dialysis
Transplant
Other
Other
7. Do you have any of the following conditions that can be associated with or coexist with IgA Nephropathy? (Please check all that apply)
*
High blood pressure
High cholesterol
Heart or blood vessel disease
Vitamin D deficiency
Anemia
Anxiety or depression around managing IgA Nephropathy, feeling in constant worry that your kidneys
might fail or not work well enough
High phosphorous
Bone issues
Gout
Diabetes
Other
Other
8. Tell us a little bit about yourself and how you first learned you had IgA Nephropathy?
*
9. Please describe how you think you can make a positive difference for other patients or caregivers facing IgA Nephropathy (Please explain in a few paragraphs, give examples of your experience managing IgA Nephropathy, any challenges, and how that might help others)?
*
10. How easy or difficult is it for you to explain IgA Nephropathy to people unfamiliar with the condition?
*
Easy
Somewhat difficult
Difficult
Very difficult
11.What do you think people misunderstand most about IgA Nephropathy? How would you help educate them?
*
12.Tell us a little about your recent leadership experience either through a job or as a volunteer? Did this involve helping to educate or engage others around a particular cause? Please explain.
*
13.Which of the following activities interests you most? (Please select your top 3)
*
Offer peer support
Lead a local support group
Raise awareness and/or educate people about the condition
Help with community outreach and/or partner with local nephrology care providers
Promote IgA Nephropathy Foundation efforts
Help with fundraising
Attend SPARK, the IgA Nephropathy Foundation’s annual meeting for patients and caregivers to learn
the latest information about the condition and build relationships
Other
Other
14.Are you willing to travel to SPARK?
*
Yes
No
Depends where it is
15.What amount of time are you comfortable giving to the Ambassador Program?
*
2-3 hours a week
4-6 hours a week
7-10 hours a week
Other
Other (feel free to note, hours available, certain times of the year when you may have more time available, etc.)
16. Are you interested in applying to become a Co-Chair of the Ambassador Program?
*
Yes
No
Unsure, but I'd like to receive more info
Send Message
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848-298-4618
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(732) 681-3462
Website:
www.igan.org
Address: P.O Box 1322 Wall,
NJ 07727