IgAN Cookbook and Aware Day Press Release
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers …
6 Tips for Doing Your Own Research
It’s hard not to want to do your own research after learning you have a health condition like IgA Nephropathy. And while you should feel empowered to do your own …
Considering a Clinical Trial?
Clinical trials are a way to test whether a new drug, device, or another type of treatment is safe for use in humans if it has any side effects if …
Thinking About What You Want From Treatment
When it comes to making a treatment decision for IgA Nephropathy, focusing on your priorities is important. Asking yourself “What do I most want to achieve from treatment?”, “How will …
Understanding Your Treatment Options
Factors that can shape treatment decisions Your provider might use a calculator of sorts to plug in information and help determine how quickly your condition may progress. This can also …
IgA Nephropathy Foundation Announces Launch of Medical and Scientific Advisory Board
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of …
Igan Basics
There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many …
National Kidney Foundation’s and IgA Nephropathy Foundation’s Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on IgA Nephropathy
The NKF and IGANF conducted an EL-PFDD meeting on IgAN to inform the FDA on the patient perspective on living with this disease. Understanding the patient perspective will help the …
Ten Years Follow-up of STOP-IgAN Trial
Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over …
Proteinuria Reduction as a Surrogate End Point in Trials of IgA Nephropathy
Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course …
What is a Kidney Biopsy?
Dr. Jared Hassler, Renal Pathologist & Associate Professor at Temple University BIO I was diagnosed with IgA nephropathy in 2001 after a routine health screening to qualify to serve as …