Andrea’s Story For Andrea, IgA Nephropathy is not just a cause she supports, it is something she lives with every single day. This Kidney Awareness Month, Andrea Stup is channeling her personal journey into meaningful action by hosting a fundraiser at her restaurant, Memories Charcoal House, in Mt. Airy, Maryland. What began as a desire …
When diagnosed with a rare disease, patients can find hope by connecting with people who understand their experience. Many patient-centered organizations address this need by providing community, education, and advocacy for those affected by specific diseases. One example is the IgA Nephropathy Foundation (IGAN), an organization dedicated to finding a cure for IgA Nephropathy (IgAN). Iowans recently …
We are proud to recognize Whitney Simmons and Kelly Chen, two incredible women serving on our Medical and Scientific Advisory Board (MSAB). Not only are they dedicated healthcare professionals, they are also living with IgAN themselves. Their voices bring real life patient experience together with clinical expertise to help shape better care, research, and advocacy …
Ad hoc announcement pursuant to Art. 53 LR Read full press release here
We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of patients with IgAN and nephrology care team members (nephrologists, physician assistants, nurse practitioners) will assess patients’ and nephrologists’ perceptions of communications between the two groups …
SAN DIEGO, Feb. 23, 2024 (GLOBE NEWSWIRE) — Travere Therapeutics, Inc., (NASDAQ: TVTX) and CSL Vifor today announced that the European Medicines Agency’s (EMA) CHMP has recommended approval of sparsentan for the treatment of adults with primary IgA nephropathy (IgAN) with a urine protein excretion >1.0 g/day (or urine protein-to-creatinine ratio ≥0.75 g/g). IgAN is a rare kidney …
On December 20, 2023, TARPEYO received full FDA approval for the new indication to reduce the loss of kidney function in adults with IgA Nephropathy (IgAN) who are at risk for their disease getting worse. “This first-ever IgAN treatment to get a full approval based on kidney function represents a beacon of hope for the …
The best way to slow the progression of IgA Nephropathy from high blood pressure is to take steps to control it. 1: Take your medicine every day as directed Most people with kidney disease are started on a drug to counteract the activation of the renin angiotensin system mentioned earlier. These drugs are either an …
Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course for progression to ESKD. The aim of this Kidney Health Initiative projectwas toidentify surrogate end points that could serve as reliable predictors of a treatment’s …
There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many questions regarding what it is, how it effects your body, how you got it, and the treatment course that may be available to you. The …
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of a Medical and Scientific Advisory Board (Advisory Board). With the members’ diverse medical and scientific backgrounds, the Advisory Board will help inform and enhance the …
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