When diagnosed with a rare disease, patients can find hope by connecting with people who understand their experience. Many patient-centered organizations address this need by providing community, education, and advocacy …
SAN DIEGO, Feb. 23, 2024 (GLOBE NEWSWIRE) — Travere Therapeutics, Inc., (NASDAQ: TVTX) and CSL Vifor today announced that the European Medicines Agency’s (EMA) CHMP has recommended approval of sparsentan for the treatment …
Ad hoc announcement pursuant to Art. 53 LR Read full press release here
On December 20, 2023, TARPEYO received full FDA approval for the new indication to reduce the loss of kidney function in adults with IgA Nephropathy (IgAN) who are at risk …
The best way to slow the progression of IgA Nephropathy from high blood pressure is to take steps to control it. 1: Take your medicine every day as directed Most …
We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of …
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers …
It’s hard not to want to do your own research after learning you have a health condition like IgA Nephropathy. And while you should feel empowered to do your own …
When it comes to making a treatment decision for IgA Nephropathy, focusing on your priorities is important. Asking yourself “What do I most want to achieve from treatment?”, “How will …
Factors that can shape treatment decisions Your provider might use a calculator of sorts to plug in information and help determine how quickly your condition may progress. This can also …
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of …
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