Turning a Personal Diagnosis into Community Impact.
Andrea’s Story For Andrea, IgA Nephropathy is not just a cause she supports, it is something she lives with every single day. This Kidney Awareness Month, Andrea Stup is channeling …
Patient and Provider Perspectives on the Patient Journey in Immunoglobulin A Nephropathy
We are proud to recognize Whitney Simmons and Kelly Chen, two incredible women serving on our Medical and Scientific Advisory Board (MSAB). Not only are they dedicated healthcare professionals, they …
Danielson to advance IgA Nephropathy awareness across Iowa—and abroad
When diagnosed with a rare disease, patients can find hope by connecting with people who understand their experience. Many patient-centered organizations address this need by providing community, education, and advocacy …
Travere and CSL Vifor Announce Sparsentan Receives Positive CHMP Opinion for the Treatment of IgAN
SAN DIEGO, Feb. 23, 2024 (GLOBE NEWSWIRE) — Travere Therapeutics, Inc., (NASDAQ: TVTX) and CSL Vifor today announced that the European Medicines Agency’s (EMA) CHMP has recommended approval of sparsentan for the treatment …
Novartis investigational iptacopan Phase III study demonstrates clinically meaningful and statistically significant proteinuria reduction in patients with C3 glomerulopathy (C3G)
Ad hoc announcement pursuant to Art. 53 LR Read full press release here
Calliditas Therapeutics announces full FDA approval of TARPEYO®
On December 20, 2023, TARPEYO received full FDA approval for the new indication to reduce the loss of kidney function in adults with IgA Nephropathy (IgAN) who are at risk …
8 Tips for taking control of your blood pressure
The best way to slow the progression of IgA Nephropathy from high blood pressure is to take steps to control it. 1: Take your medicine every day as directed Most …
Improving Patient-Provider Communications in IgA Nephropathy.
We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of …
IgAN Cookbook and Aware Day Press Release
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers …
6 Tips for Doing Your Own Research
It’s hard not to want to do your own research after learning you have a health condition like IgA Nephropathy. And while you should feel empowered to do your own …
Thinking About What You Want From Treatment
When it comes to making a treatment decision for IgA Nephropathy, focusing on your priorities is important. Asking yourself “What do I most want to achieve from treatment?”, “How will …
Understanding Your Treatment Options
Factors that can shape treatment decisions Your provider might use a calculator of sorts to plug in information and help determine how quickly your condition may progress. This can also …
