There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many questions regarding what it is, how it effects your body, how you got it, and the treatment course that may be available to you. The …
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of a Medical and Scientific Advisory Board (Advisory Board). With the members’ diverse medical and scientific backgrounds, the Advisory Board will help inform and enhance the …
Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over three years. As a follow-up we evaluated renal outcomes in patients over a follow-up of up to ten years in terms of serum creatinine, proteinuria, …
The NKF and IGANF conducted an EL-PFDD meeting on IgAN to inform the FDA on the patient perspective on living with this disease. Understanding the patient perspective will help the FDA when it decides whether to approve potential medicines for IgAN. On August 19, 2019, the National Kidney Foundation and the IGA Nephropathy Foundation of …
Stuart Miller, Moderator Patient Panel BIO Stuart is an advocate for NKF and an ambassador for AAKP. He was diagnosed with IgA Nephropathy in May of 2008. Making some lifestyle changes and with good care from his doctors Stuart was able to manage his IgA until July of 2018. Thanks to his wife Carole and …
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers patients guidance to improve quality of life The IgA Nephropathy Foundation (IgAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease …
April is National Donate Life Month and the IGA Nephropathy Foundation of America would like to encourage people to consider being a kidney donor. Just a few statistics,13 people die each day while waiting for a life-saving kidney transplant and over 3,000 patients are added to the list each month. With this desperate need of …
