EL-PFDD (Externally Led Patient Focused Drug Development) Meeting on IGAN

My name is Bonnie Schneider and I am the founder of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get thru this new chaos, which was now our new normal.