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EL-PFDD (Externally Led Patient Focused Drug Development) Meeting on IGAN
August 19, 2019 @ 8:30 am - 3:30 pm
3501 University Blvd E
Hyattsville, MD 20783
Arrival time Sunday August 19th, Patient meeting 8:30-3:30
PLEASE HELP US FIGHT IGAN & HSP
A Message from the Founders
My name is Bonnie Schneider and I am the co-founder along with my husband Ed of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get through this new chaos, which was now our new normal.
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