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Rare Disease Day

February 28 All day

Rare, but not invisible. ❤️💙🦓 IgA Nephropathy may be considered rare, but for those of us living with it, it’s an everyday reality. Today, we raise our voices to drive research, awareness, and hope.

RARE Is Not Rare

One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn’t have to be that way.

Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 28th.