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May 2019
1st Annual IGAN Golf outing
21935 Society Hill Rd Leonardville, MD 20650
Find out more »June 2019
15th Annual 5K for Kidneys 2-Mile Walk
2700 Allaire Rd Wall Twp, NJ 07719 7:30 Reg, 8:30 Run start, 9:00 Opening ceremony 9:15 Walk start
Find out more »15th Annual 5K for Kidneys & 2-mile
Walk Wall New Jersey June 9, 2019 IGAN/DDI Golf Outing Coram Long Island TBA Click here to see Walk Flyer For Registration click here
Find out more »July 2019
4th Annual DDI/IGAN Golf Outing LI, NY
4th Annual DDI/IGAN Golf Outing LI, NY
Find out more »4th Annual IGAN/DDI Golf Outing
5933 Northern Blvd East Norwich, NY 11732 Friday July 18, 2019 1:00 PM Shotgun start
Find out more »August 2019
EL-PFDD (Externally Led Patient Focused Drug Development) Meeting on IGAN
3501 University Blvd E Hyattsville, MD 20783 Arrival time Sunday August 18th, Patient meeting 8:30-3:30
Find out more »PLEASE HELP US FIGHT IGAN & HSP
A Message for the Founder
My name is Bonnie Schneider and I am the founder of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get thru this new chaos, which was now our new normal.
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