12 events found.
Events
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Patient Support Group
Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.
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Caregiver/Carepartner Support Group
VIRTUAL / ZOOMIf you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.
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Rare Disease Day
Access our Social Media Kit Rare Disease Day is an internationally recognized day and initiative to raise awareness, generate support and advocate for care and treatments for the 300 million people globally, including the 30 Americans (about half of whom are children) who are living with a rare disease. It takes place annually on the …
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Patient Support Group
Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.
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Caregiver/Carepartner Support Group
VIRTUAL / ZOOMIf you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.
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Webinar: How best to eat for IgA Nephropathy
Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event! WATCH ON DEMAND REGISTRATION REQUIREDhttps://us02web.zoom.us/rec/share/8OD3NwtQ_m985bR14bl6xfQYAotFbs6yO9VY9_EvRWn8O424WlP848br4O4IznIE.VPYIM5E6LUxcOXj3?startTime=1743616833000 Passcode: R!NK#?0C This webinar is in partnership with American Kidney Fund
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Caregiver/Carepartner Support Group
VIRTUAL / ZOOMIf you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.
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Harnessing Social Media to Find a Living Kidney Donor
Wednesday, April 16, 2025 7:00 PM ET Finding a living kidney donor can feel overwhelming, but social media can be a powerful tool to amplify your message and connect with potential donors. Finding a donor is possible. Let’s make social media work for you!
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Patient Support Group
Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.
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ON DEMAND: Learn about an approved treatment option for IgAN
WATCH ON DEMAND:https://us02web.zoom.us/rec/share/QGDd1WFf4CUaHQxRBBEkijMk5Ukuf7kFXU7arbid2poVyzQvwHyjolPwd6ZloAQq.Ly6xn99I7i3YqE-G Passcode: 9Mp%H3u% Are you interested in learning about an approved treatment option for IgAN? You are invited to join the IgA Nephropathy Foundation’s free educational webinar for patients and care partners, taking place virtually on Zoom. This webinar will share information about IgAN which you can then discuss with your doctor. This …
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IgAN Aware Day
May 2025 marks 21 years since Ed and Bonnie Schneider founded the IgA Nephropathy (IgAN) Foundation after their son’s diagnosis, creating a support and education hub for people living with IgAN. On May 14th, we celebrate IgAN Aware Day—a special milestone marking 21 years of dedication to the IgA Nephropathy community. Since our founding, we've …
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Webinar: Coping with mental health challenges in IgA Nephropathy
It is natural to have emotional responses related to a diagnosis of IgA Nephropathy. Figuring out how to handle the rollercoaster of emotions can be challenging. In this webinar we will discuss how you or your loved ones are handling the emotions along with ways to navigate your health journey by considering how to best …
