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12 events found.

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Today

November 2024

Tue 19
November 19, 2024 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

Wed 20
November 20, 2024 @ 8:00 pm - 9:00 pm

Learn about an IgAN treatment that can help lower proteinuria and preserve kidney function in adults with primary IgA nephropathy (IgAN)

Are you interested in finding out about one of thelatest emerging therapies for IgA nephropathy(IgAN)? Join us for a FREE WEBINAR brought to you byTravere Therapeutics to learn more. DATE: Wednesday, November 20, 2024TIME: 8:00 – 9:00 p.m. ET This webinar is intended for all, including individualsnewly diagnosed with IgAN, individuals currentlytaking medication for IgAN, …

December 2024

Mon 16
December 16, 2024 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Tue 17
December 17, 2024 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

January 2025

Mon 20
January 20 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Tue 21
January 21 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

Wed 29
January 29 @ 6:00 pm - 7:00 pm

Talkspace: Managing Rumination Triggers

Rumination is the experience of feeling like you can’t get something out of your mind. Rumination wastes your time and energy and leaves you feeling exhausted. Even though you might feel helpless when it comes to rumination, you actually have the ability to interrupt it. In this class, your host will guide you through practical …

February 2025

Mon 17
February 17 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Tue 18
February 18 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

Fri 28
February 28

Rare Disease Day

Access our Social Media Kit Rare Disease Day is an internationally recognized day and initiative to raise awareness, generate support and advocate for care and treatments for the 300 million people globally, including the 30 Americans (about half of whom are children) who are living with a rare disease. It takes place annually on the …

March 2025

Mon 17
March 17 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Tue 18
March 18 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765