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12 events found.

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Today

April 2025

Wed 2
April 2 @ 2:00 pm - 3:00 pm

Webinar: How best to eat for IgA Nephropathy

Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event! WATCH ON DEMAND REGISTRATION REQUIREDhttps://us02web.zoom.us/rec/share/8OD3NwtQ_m985bR14bl6xfQYAotFbs6yO9VY9_EvRWn8O424WlP848br4O4IznIE.VPYIM5E6LUxcOXj3?startTime=1743616833000 Passcode: R!NK#?0C This webinar is in partnership with American Kidney Fund

Tue 15
April 15 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

Wed 16
April 16 @ 7:00 pm - 8:00 pm

Harnessing Social Media to Find a Living Kidney Donor

Wednesday, April 16, 2025 7:00 PM ET Finding a living kidney donor can feel overwhelming, but social media can be a powerful tool to amplify your message and connect with potential donors. Finding a donor is possible. Let’s make social media work for you!

Mon 21
April 21 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Wed 30
April 30 @ 8:00 pm - 9:00 pm

ON DEMAND: Learn about an approved treatment option for IgAN

WATCH ON DEMAND:https://us02web.zoom.us/rec/share/QGDd1WFf4CUaHQxRBBEkijMk5Ukuf7kFXU7arbid2poVyzQvwHyjolPwd6ZloAQq.Ly6xn99I7i3YqE-G Passcode: 9Mp%H3u% Are you interested in learning about an approved treatment option for IgAN?    You are invited to join the IgA Nephropathy Foundation’s free educational webinar for patients and care partners, taking place virtually on Zoom. This webinar will share information about IgAN which you can then discuss with your doctor. This …

May 2025

Wed 14
May 14

IgAN Aware Day

May 2025 marks 21 years since Ed and Bonnie Schneider founded the IgA Nephropathy (IgAN) Foundation after their son’s diagnosis, creating a support and education hub for people living with IgAN. On May 14th, we celebrate IgAN Aware Day—a special milestone marking 21 years of dedication to the IgA Nephropathy community. Since our founding, we've …

Wed 14
May 14 @ 7:00 am - 8:00 pm

Webinar: Coping with mental health challenges in IgA Nephropathy

It is natural to have emotional responses related to a diagnosis of IgA Nephropathy. Figuring out how to handle the rollercoaster of emotions can be challenging. In this webinar we will discuss how you or your loved ones are handling the emotions along with ways to navigate your health journey by considering how to best …

Wed 14
May 14 @ 11:00 am - 3:00 pm

Go Global Network Canada Kick Off

Sheraton Centre Toronto Hotel 123 Queen St W, Toronto, Ontario, Canada

Join us for an exclusive luncheon to celebrate this exciting initiative and our commitment to expanding our global network for the IgA Nephropathy (IgAN) community. This luncheon marks the beginning of a movement to:- Build relationships with healthcare providers and partner organizations in Canada and across the region.- Establish an international network led by local …

Mon 19
May 19 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

Tue 20
May 20 @ 7:00 pm - 8:30 pm Caregiver/Carepartner Support Group

Caregiver/Carepartner Support Group

VIRTUAL / ZOOM

If you know and care for someone with IgAN join us for our Caregiver / Care Partner Support Group. We've created a safe space for this community to share.

June 2025

Wed 11
June 11 @ 8:00 pm - 9:00 pm

Session 2: The Evolving IgAN Landscape

Register today for our free live webinar, "Session 2: The Evolving IgAN Landscape,” taking placeonline on June 11 at 8:00PM ET. This session is part of an ongoing series created for patients and care partners. Join leading experts as they discuss IgAN symptoms, the role of proteinuria (protein in the urine), and available education and …

Mon 16
June 16 @ 7:00 pm - 8:30 pm

Patient Support Group

Come hear what is upcoming at the IGA Nephropathy Foundation while meeting and sharing stories with fellow warriors. We never want anyone to feel alone.

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765