0 Posts in 0 Topics Made by 3 Members. Latest Member: mclark Latest Post by Guest on January 1, 1970, 00:00
PLEASE HELP US FIGHT IGAN & HSP
A Message for the Founders
My name is Bonnie Schneider and I am the co-founder along with my husband Ed of the IGA Nephropathy Foundation of America.
In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get through this new chaos, which was now our new normal.