Meet Alister
My journey started many years ago when, after graduating from university, a GP told me during a routine exam, “you have microscopic blood in your urine, but no need to worry about it, so I didn’t worry about it,” but around ten years later after the birth of my second child, tests again showed microscopic blood and I was referred to a nephrologist who recommended a kidney biopsy, confirming IgA Nephropathy.
I started a clinical trial in November 2020, and since that day my kidney function has remained relatively stable and my protein spillage has reduced, which made me want to “give back” and help drive a front-end centre role as a UK Ambassador—working with clinicians, academics, pharmaceutical companies and, most of all, other patients—to understand the disease, support others, and raise awareness so the disease does not hold me back.
IgA Nephropathy in the UK: What You Should Know
Most common primary glomerulonephritis worldwide
IgA nephropathy is a rare kidney disease in the UK, affecting around 1 in 50,000 people, and up to half of patients may progress to kidney failure over time.
~50% of patients progress to kidney failure within 10–20 years
Typically diagnosed in young adults (20s–30s)
The disease course is highly variable and unpredictable
Supporting World-Leading IgAN Research in the UK
At the IgAN Foundation, we’re committed to advancing not only patient support and education but also the scientific research that will shape the future of IgA Nephropathy.
Visit the Mayer IgA Nephropathy Research Group’s website to learn how the team at the University of Leicester is advancing our understanding of IgAN, helping to develop new treatments and working towards the ultimate goal of a cure. Learn about the group’s research, hear patient’s stories and find out how philanthropy is helping to drive progress.
Learn More HereContinued research is essential. Every breakthrough brings us closer to earlier diagnosis, more effective therapies, and ultimately, a cure.
Support the Research
If you would like to help accelerate progress, you can make a direct donation to support Professor Barratt’s laboratory and ongoing research on IgA nephropathy.
Donate to the IgA Nephropathy Research Fund
Make a Donation to the Research LabMake a Donation to the Research Lab
Your generosity helps fund innovative research that has the potential to improve—and save—the lives of people living with IgA nephropathy for generations to come.
Our goal is to empower the UK IgAN community with tools, information, and support tailored to their unique healthcare landscape
Strengthen Relationships
Strengthen relationships with healthcare providers and partner organisations in the UK and beyond.
Establish an International Network
Establish an international network led by local Foundation Ambassadors.
Develop Tailored Resources
Develop tailored resources to meet the unique needs of UK IgAN patients.
Raise Global Awareness & Advocate
Raise global awareness and advocate for improved access to treatments and support.
Clinical Trials Information
Resources
- Patient Handbook: English 8-page patient handbook
- FB Group: https://www.facebook.com/groups/915274415226674/
- UK Kidney Association – https://www.ukkidney.org/rare-renal/patient-information-0/iga-nephropathy
- Kidney Care UK – https://kidneycareuk.org/kidney-disease-information/kidney-conditions/iga-nephropathy/
- Patient Grants Kidney Care UK: https://kidneycareuk.org/get-support/patient-grants/#:~:text=Kidney%20Care%20UK%20is%20a%20charity%20that,or%205)%20or%20have%20received%20a%20transplant
- National Kidney Federation Benefits information for patients and carers:
https://www.kidney.org.uk/benefits-information-for-patients-and-carers#:~:text=There%20are%20many%20benefits%20available%20to%20kidney,regular%20and%20substantial%20care%20to%20disabled%20people - Kidney Research UK – https://www.kidneyresearchuk.org/conditions-symptoms/iga-nephropathy/
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