IgA April

Volume 04| April 3, 2020

IgA Nephropathy Foundation News

New Members

We would like to start off by welcoming our new patients to our IGAN family. Welcome!!! If you need anything at all, please contact carrie@igan.org or bonnie@igan.org. We are always here for you!

COVID-19 Update

This is a very uncertain time for all of us. We are always here for you to answer any questions or concerns you might have. We are posting resources for you on our Facebook platform. If you are not using social media to access information reach out to Carrie@igan.org or bonnie@igan.org and we will try our best to help you find the resources you need. Please know you are all in our thoughts and prayers.

IGANF Spark 2020

Due to the COVID-19 crisis we are monitoring our event closely.We will make a final decision VERY SOON. I know many of you were very excited for SPARK.

In the event we need to postpone our gathering until next year, we will hold IGANF SPARK 2020 as a webinar series stretched out over a couple month time frame. We are working on logistics for this now. The webinar will still cover all of our sessions including our clinical trial open house. This will allow you the opportunity to understand your clinical trial options. Each session will be live (and recorded) and will offer you an opportunity for a Q&A session with each speaker.

April is Donate Life Month

Happy Donate Life Month! Please join the IgAN Foundation in celebrating those that have gifted our patients life. Every Friday throughout the month of April we will be posting 2 stories from living donors that gifted a kidney to an IgAN patient. We look forward to celebrating life and happiness in a world full of uncertainty.To listen in, go to our website and click on the For Patients tab and follow prompts to Donate Life Series or you can click here

New Foundation Mission Statement

We are excited to share some good news with you. After 16 years we have redefined the Foundation’s mission. We are priding ourselves by being an organization that is operated solely by IGAN caregivers and patients. Our new mission statement is:

“Our mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support. As a patient run organization, we will work together with the hope of finding better treatment options and ultimate cure.”

This is going to be a big year of growth for the Foundation. Be on the lookout for more IGAN education with webinars and utilizing our social media platforms. We have several new committees onboard and we are excited to extend our patient service nationally and plan on internationally as this growth takes place. If you are interested in volunteering for the Foundation, please contact carrie@igan.org.

We hope you are staying safe & healthy during this uncertain time. Please know that we are always here for you.
Much love to all of our patients!
Bonnie Schneider & Carrie Enicke