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IgAN Warrior

To the IgAN Warrior community, IgA Nephropathy Awareness Day and week are all about you! Our community is full of hope, connection, and support that drive us forward. We encourage you to speak openly and share your resilience. Check out the IgAN Warrior Social Toolkit below for some suggestions to help tell your story online during this week of celebration and reflection! For information on the spirit days, click here!

Get involved to make everyone #IgANAware

View Spirit Week Details

Use Our Social Tool Kit

The toolkit includes drafted social media content, hashtag and handle info, spirit week details, and graphics so you can easily post to Facebook and other channels! Click here to access the toolkit.

Share Your Story

We want to hear your story. Click here to record and upload your short 10-20 second video sharing what you love most about your IgAN family!

Become a Member

When you become an IgAN Foundation member, you’re not only gaining access to a trove of resources—you’re also helping to support the IgAN community. Join our global family!

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(848) 298-4618

(732) 681-3462

PO Box 1322 Wall, NJ 07727

© 2023 All Rights Reserved.

May 14, Sunday: Mother’s Day & IgA Nephropathy Awareness Day

The IgAN Foundation was sparked by a mother’s love and has grown into a community sharing crucial resources and working toward a cure. This day kicks off a week of celebrating the IGA Nephropathy family all week!

May 15, Monday: Mindfulness

IgA Nephropathy can be challenging and mindfulness is an important part of caring for yourself. Take a moment today and implement a mindfulness practice, meditate, or take a few moments in reflection to check in with yourself.

May 16, Tuesday: Share Your Story

On this day, the Foundation will share the video with Warrior stories compiled (submit yours here if you haven’t yet). We encourage you to also share your own photos and videos from moments along your journey!

May 17, Wednesday: Wellness

What are you doing to feel well today? IgA Nephropathy can sometimes make life feel uncontrollable, but there are some things we can control, for example:

  • Enjoyable movement (a stretch, a walk, dancing to a favorite song)
  • Eating food that’s right for us individually
  • Checking in with ourselves
  • Meditating

May 18, Thursday: Thank those who care

Between care teams, care partners, and medical providers, a lot goes into the care that sustains us as we live with IgA Nephropathy. Take this opportunity to express your appreciation to them!

May 19, Saturday: Rally cry

When the IgA Nephropathy Foundation was created, there were no resources to treat IgA Nephropathy. Now, there are 2 approved FDA treatments and many clinical trials in the works. Our community is strong and full of hope— here’s to even more progress in the future!

May 20, Saturday: Celebration! 

We’ll be hosting an in-person celebration (details to come). We’ll miss you if you can’t make it, but please take the time to celebrate however works for you — wearing your IgAN Foundation sunglasses, spending time with loved ones, etc. — just be sure to share a photo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765