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IgAN Warrior

To the IgAN Warrior community, IgA Nephropathy Awareness Day and Spirit Week are all about you! We’re celebrating 20 years of the Foundation this year. Our community is full of hope, connection, and support that drive us forward. We encourage you to share your journey and how the Foundation has supported you throughout it. Check out the IgAN Warrior Social Toolkit for some suggestions to help tell your story on our IgAN Day Kudo board and social media during this week of celebration and reflection! 

For information on the spirit days, click here:

View Spirit Week Details

Use Our Social Tool Kit

The toolkit includes drafted social media content, hashtag and handle info, spirit week details, and graphics so you can easily post to Facebook and other channels! Click here to access the toolkit.

Post on Kudo

Click here to access our IgAN Day Kudo Board, where you can post messages during Spirit Week and on IgAN Day to celebrate how far the IgAN Family has come in the last 20 years. 

Become a Member

If you’re not a member yet, join us here! Becoming an IgAN Foundation member is free and keeps you updated on the latest resources, publications and events while granting you access to: 

  • The IgAN+ app with support resources 
  • Calm app membership 
  • Talkspace mobile and online therapy 
  • Featured clinical trials 
  • Patient Aid 
  • Monthly support meetings
  • & more!

Brought to you in partnership with our 2024 IgAN Aware Day sponsors

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Special thanks to our Regional Event Sponsors

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Spirit Week Details

Sunday, May 12: Where We Were and Where We Are 
The Foundation is celebrating how far the community has come in the last 20 years by comparing where we’ve been with where we are today. We encourage our IgAN family to highlight key moments from your IgAN journeys and celebrate how far you’ve come on the IgAN Day Kudo board or social media!

Monday, May 13: Mind-Body Connection 
IgA Nephropathy can be challenging, and cultivating a strong mind-body connection can help with self-care. We challenge you to take a moment to do one thing that makes you feel connected to your body and grounded, such as mindful meditation, enjoyable movement, eating a meal that fits your needs, or reflecting and checking in with yourself.

Tuesday, May 14: IgAN Awareness Day 
Over the last 20 years, the Foundation has grown our IgAN family, developing and sharing crucial resources. With 2 approved FDA treatments and many clinical trials in the works, our community is strong and full of hope! Today we celebrate everyone who has been a part of the Foundation’s 20-year #IgANjourney and invite anyone connected to IgAN to join us in working toward a cure, sharing support and celebrating a brighter future!

Wednesday, May 15: Risk Quiz
IgA Nephropathy affects Asian populations at a higher rate. The IgAN Foundation has worked to address this with our Risk Quiz and Facts Webpage for people of Asian descent. We urge our IgAN Family to share this Risk Quiz and raise awareness in their communities.

Thursday, May 16: Day of Gratitude
Support enables us to better manage life with IgAN. On this day, our community will honor anyone who has made life with IgAN better — whether that’s fellow Warriors, care partners, kidney donors, care teams, medical providers, or biological or found family. Please consider sharing a photo on Kudo or social media and thanking them for their support.

Friday, May 17: Looking Back, Moving Forward 
In the last 20 years, our IgAN Family has made tremendous strides in treatment, research, resources and support. We’re eager to continue advancing! We encourage everyone to reflect on Kudo or social media and post a milestone moment or Foundation benefit that sparks excitement or hope. That might mean new treatment options, attending an event, accessing Talkspace or Calm, or your own uplifting memory. Share what inspires you!

Saturday, May 18: Celebration Day
The future is bright! As we wrap up #IgANaware Spirit Week and embark on our year-long 20th Anniversary celebration, we invite our IgAN Family to gather in person! We’ll be hosting a celebratory event (details to come) — or you can find a list of events near you below.  Celebrate however you want — wearing your IgAN Day merch, spending time with loved ones, etc. — just be sure to share a photo on social media or Kudo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765