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Ten Years Follow-up of STOP-IgAN Trial
Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over three years. As a follow-up we evaluated renal outcomes in patients over a follow-up of up to ten years in terms of serum creatinine, proteinuria, […]
Read MoreProteinuria Reduction as a Surrogate End Point in Trials of IgA Nephropathy
Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course for progression to ESKD. The aim of this Kidney Health Initiative projectwas toidentify surrogate end points that could serve as reliable predictors of a treatment’s […]
Read MoreKDIGO Announces Publication of the Nomenclature for Kidney Function and Disease Conference Report and Glossary
Brussels, Belgium Recognizing the need for more precise, consistent, and patient-centered nomenclature describing kidney function and disease, Kidney Disease: Improving Global Outcomes (KDIGO) organized a consensus conference in June 2019. The meeting was attended by diverse stakeholders, including clinicians caring for persons with kidney disease, patients, researchers, and editors of all major kidney journals as […]
Read MoreIgA Nephropathy Foundation of America signs on with other advocacy organizations to request additional funding for the NIDDK to research COVID-19 impacts on kidneys and for Kidney X for research innovation.
The Honorable Richard Shelby Chair, Senate Committee on Appropriations 304 Russell Senate Office Building Washington, DC 20510 The Honorable Roy Blunt Chair, Subcommittee on Labor, Health and Human Services, Education and Related Agencies 347 Russell Senate Office Building Washington, DC 20510 The Honorable Patrick Leahy Ranking Member, Senate Committee on Appropriations 437 Russell Senate Office […]
Read MoreKidney Research and Innovation Letter
The Honorable Nita Lowey Chair, House Committee on Appropriations 2365 Rayburn House Office Building Washington, DC 20515-3217 The Honorable Rosa DeLauro Chair, Subcommittee on Labor, Health and Human Services, Education and Related Agencies 2413 Rayburn House Office Building Washington, DC 20515-0703 The Honorable Kay Granger Ranking Member, House Committee on Appropriations 1026 Longworth House Office […]
Read More2020 1st Quarter Report – UAB Findings in IgA Nephropathy
Diagnosis of IgA nephropathy The diagnostic feature of immunoglobulin A (IgA) nephropathy (IgAN) is the substantial accumulation of IgA in the filtering structures (glomeruli) of the kidneys. When IgAN was first described in 1968, most patients also had another antibody, IgG, in the glomeruli. The diagnosis of IgAN does not however require IgG to be […]
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IgA April
Volume 04| April 3, 2020 IgA Nephropathy Foundation News New Members We would like to start off by welcoming our new patients to our IGAN family. Welcome!!! If you need anything at all, please contact carrie@igan.org or bonnie@igan.org. We are always here for you! COVID-19 Update This is a very uncertain time for all of […]
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IgA February
Volume 03 | February 29, 2020 IgA Nephropathy Foundation News KidneyX Update On Thursday, February 6, the IgAN Foundation attended the KidneyX Congressional Briefing. KidneyX is a public-private partnership between the US Department of Health and Human Services and the American Society of Nephrology to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases. […]
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Pivotal role found for IgG autoantibodies in IgA nephropathy
The most common form of the kidney disease called glomerulonephritis is IgA nephropathy. Now a study published in the Journal of the American Society of Nephrology by researchers at the University of Alabama at Birmingham largely validates the hypothesis that a second immunoglobulin, IgG, is a crucial part of the pathogenic immunodeposits in glomeruli of patients with IgA nephropathy. […]
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IgA Nephropathy Patients Invited to Speak About their Disease to the FDA
National Kidney Foundation and IGAN Foundation of America organizing meeting to hear voices of patients with this chronic kidney disease New York, NY – August 16, 2019 – The many voices of patients with IgA nephropathy, a chronic kidney disease, will come together on Monday, August 19, during an Externally-led Patient-focused Drug Development (EL-PFDD) meeting […]
Read MorePLEASE HELP US FIGHT IGAN & HSP
A Message from the Founders
My name is Bonnie Schneider and I am the co-founder along with my husband Ed of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get through this new chaos, which was now our new normal.
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