6 Tips for Doing Your Own Research

It’s hard not to want to do your own research after learning you have a health condition like IgA Nephropathy. And while you should feel empowered to do your own research, it’s also important to make sure the information you find is from credible sources (our website, among them!). Otherwise, you can wind up feeling, […]

Considering a Clinical Trial?

Clinical trials are a way to test whether a new drug, device, or another type of treatment is safe for use in humans if it has any side effects if it works better than other treatments, and if it helps improve the quality of life. While there is still no cure for IgA Nephropathy, the […]

Thinking About What You Want From Treatment

When it comes to making a treatment decision for IgA Nephropathy, focusing on your priorities is important. Asking yourself “What do I most want to achieve from treatment?”, “How will this treatment help me feel better and affect my kidney function?”, and “What are the upsides and downsides of the treatment?” are all great places […]

Understanding Your Treatment Options

Factors that  can shape treatment decisions Your medical history, including other health conditions. Your blood pressure. How much protein is in your urine? Protein circulates in your blood, but it’s not usually found in the urine. Having protein in the urine (called proteinuria or albuminuria) can be a sign of kidney damage. Your estimated glomerular […]

Navigating IgA Nephropathy Treatment Decisions

IgA Nephropathy Foundation Announces Launch of Medical and Scientific Advisory Board

May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of a Medical and Scientific Advisory Board (Advisory Board). With the members’ diverse medical and scientific backgrounds, the Advisory Board will help inform and enhance the […]

Igan Basics

There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many questions regarding what it is, how it effects your body, how you got it, and the treatment course that may be available to you. The […]

National Kidney Foundation’s and IgA Nephropathy Foundation’s Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on IgA Nephropathy

The NKF and IGANF conducted an EL-PFDD meeting on IgAN to inform the FDA on the patient perspective on living with this disease. Understanding the patient perspective will help the FDA when it decides whether to approve potential medicines for IgAN. On August 19, 2019, the National Kidney Foundation and the IGA Nephropathy Foundation of […]

Ten Years Follow-up of STOP-IgAN Trial

Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over three years. As a follow-up we evaluated renal outcomes in patients over a follow-up of up to ten years in terms of serum creatinine, proteinuria, […]

Proteinuria Reduction as a Surrogate End Point in Trials of IgA Nephropathy

Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course for progression to ESKD. The aim of this Kidney Health Initiative projectwas toidentify surrogate end points that could serve as reliable predictors of a treatment’s […]