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News & Media
Pivotal role found for IgG autoantibodies in IgA nephropathy
The most common form of the kidney disease called glomerulonephritis is IgA nephropathy. Now a study published in the Journal of the American Society of Nephrology by researchers at the University of Alabama at Birmingham largely validates the hypothesis that a second immunoglobulin, IgG, is a crucial part of the pathogenic immunodeposits in glomeruli of patients with IgA nephropathy. […]
IgA Nephropathy Patients Invited to Speak About their Disease to the FDA
National Kidney Foundation and IGAN Foundation of America organizing meeting to hear voices of patients with this chronic kidney disease New York, NY – August 16, 2019 – The many voices of patients with IgA nephropathy, a chronic kidney disease, will come together on Monday, August 19, during an Externally-led Patient-focused Drug Development (EL-PFDD) meeting […]
The IGA Nephropathy Foundation of America Funds Innovative Career Skills Curriculum for DDI’s Children’s Day Program
On Thursday, July 18th, 2019, IGA Nephropathy Foundation of America, Inc. hosted its annual IGAN/DDI Golf Outing. Hosted at The Muttontown Club in East Norwich, 50% of funds raised were donated to DDI’s Children’s Day Program (CDP). Karl Ramjeet, one of the event organizers, who has a daughter that attends DDI and a CRP resident […]
PLEASE HELP US FIGHT IGAN & HSP
A Message from the Founders
My name is Bonnie Schneider and I am the co-founder along with my husband Ed of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get through this new chaos, which was now our new normal.
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