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Patient + Care Partner Support

You are not alone in your IgAN journey. If you’d like to get help and resources from others on the same path, we offer several peer support resources to connect you with other IgAN patients and care partners.


Virtual Support Groups

We would like to invite you to participate in our monthly IgA Nephropathy Support Groups! We hold patient support groups virtually on the third Monday of every month and Care Partner support groups the third Tuesday of every month to give IgAN patients and those that care for them an opportunity to meet each other and share their journeys. Our full calendar of upcoming events can be found on our website by visiting igan.org/events

If you want to connect with others who understand your journey, reach out to John at john@igan.org for Patient Support Groups or Alena at alena@igan.org for Care Partner Support Groups. We look forward to meeting you virtually! 

If you’re interested, please fill out the form below and you will receive details about the Support Groups. We hope to see you there!


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Facebook Groups

For updates on new peer support offerings and other IgAN resources, please follow and like our IgA Nephropathy Foundation Facebook page.

If you’re looking for support online, there are several Facebook groups where you can connect with other IgAN patients or care partners:

  • IgA Nephropathy Foundation Trials & Research Group
  • IgA Nephropathy Support For Women And Pregnancy
  • IgA Nephropathy (international group)*
  • IGA Nephropathy Canada*

*These Facebook groups are not affiliated with the IgA Nephropathy Foundation, so we cannot endorse the content of these groups

If you have any questions, are looking to connect with someone, or don’t know where to start, please reach out to us at info@igan.org!

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(848) 298-4618

PO Box 1322 Wall, NJ 07719

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765