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Episode 18: Tips for Dealing with the Emotional Side of Living with IgAN


October 8, 2024

Living with IgA Nephropathy (IgAN) means not only managing the disease itself, as well as the related fatigue and other related health concerns, but also coping with the mental and emotional challenges come with having a chronic health concern. Patients may experience feelings of loss, depression, fear, denial, anger, or frustration over changes to their health and uncertainly of what the road ahead might look like. Loved ones often feel overwhelmed too faced with new responsibilities and concern.

In this episode, we speak with David Walter, D.O, psychiatrist and ambassador for the IgAN Foundation. Dr. Walter specializes in helping patients manage chronic illnesses like Crohn’s, colitis, and more. He also plays an active role in raising awareness for IgAN to help advance the Foundation’s mission and reach patients earlier in their journey. 

David delves into the essential connection between mental and physical health for individuals with chronic illnesses. As someone who lives with chronic conditions himself, he provides a relatable and practical perspective on mindfulness, emotional awareness, and the importance of prioritizing mental well-being amidst daily challenges.

He explains the concept of medical PTSD and how past medical experiences can continue to impact mental health. Through this lens, David shares practical tips for positive coping and incorporating mindfulness into daily life, emphasizing the importance of starting small and building consistency. Drawing from his personal journey, he also offers advice on managing stress, setting boundaries, and avoiding comparison—especially in today’s social media-driven world. 

His insights are equally valuable for patients and their families, underscoring the importance of open communication, self-compassion and seeking support.

Key Takeaways from the Episode:

  • Mindfulness: Simple practices like deep breathing and mindful walking can help ease anxiety and improve emotional regulation by keeping individuals grounded in the present moment.
  • Acceptance: Embracing one’s emotions and circumstances without judgment is crucial for maintaining mental well-being, particularly for those with chronic illness.
  • Communication and support: Open communication with loved ones and seeking professional help can strengthen relationships and provide emotional relief for both patients and caregivers.

David’s experience serves as an important reminder that mental health is just as vital as physical health.

Previous Post:IgAN Journey Episode 17
Next Post:Episode 19: Leaning In – A Journey of Love, Resilience and Care

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765