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Spark 2022

Spark 2022 | NASHVILLE,TN

REGISTER BY APRIL 15TH FOR HUGE EARLY BIRD DISCOUNT

HOW IT STARTED?

The ELPFDD-Externally Led Patient-Focused Drug Development Meeting

We partnered with the National Kidney Foundation to bring awareness about the burdens patients face while on their IgAN journey. Over 180 patients, academia, and industry members attended the event. The goal was to express our desperate need for better treatments for IgAN while also addressing the need to accelerate the pathways to bring them to market. This was a global effort and we had over 300 virtual attendees from all over the world. For many this was the first time they ever met another person with IgA Nephropathy

WHY SPARK?

When you get a group of people with a common goal aka real treatment and cure for IgA Nephropathy – we create a SPARK. No one should face IgAN alone.

WHAT IS SPARK?

What is SPARK? SPARK is a 1-day symposium hosted by The IgA Nephropathy Foundation for IgA Nephropathy patients and their caregivers to learn about the disease, living with the disease and being a caregiver for those with the disease. It promises to be an information packed event with plenty of time for mingling with others and sharing your stories.

WHAT IS INCLUDED IN MY REGISTRATION FEE?

Registration is $150/per Hotel Room. Early Bird Registration is $75 [by April 15th]. Registration is per Hotel Room. All guests attending the conference must be registered

  • Hotel Accommodations based on (double occupancy) for 2 Nights
  • Welcome to SPARK NASHVILLE Swag Kit: Lanyard, Badge, Notebook, Pen, T-Shirt, Bag and more!
  • Access to all Spark Sessions

Meals Included:

Sunday, July 24th Cocktail Reception + Dinner

Monday, July 25th Breakfast, Lunch, Snacks and IgAN Community Celebration Dinner at Wildhorse Saloon

When & Where

When

Sunday, July 24, 2022 at 6:00 PM EDT
-to-
Monday, July 25, 2022 at 5:00 PM EDT

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Where

Sonesta Nashville Airport Hotel 600 Marriott Drive Nashville, TN 37214

 

Contact – IGA Nephropathy Foundation

amanda@igan.org | alena@igan.org | 609-915-0371

Agenda

Session Topics as follows

  • Mental Wellness
  • ABC of IGAN
  • Understanding your
  • Labs
  • IgAN Patient Panels [hear from fellow warriors from all stages of diagnosis]
  • Understanding your
  • Kidney Biopsy
  • Covid + Kidney Disease
  • Advocacy + Ambassador
  • Finding Your Kidney Donor
  • Carepartner Panel
  • Nutrition + IGAN
  • Clinical Trials

Sunday, July 24

4:00 – 6:00pm
Pre – Check-In
6:00 – 10:00pm

WELCOME RECEPTION / Check-In
Advocacy + IGAN Patient Ambassador Program Review

Monday, July 25

7:30 – 8:30am

BREAKFAST / Check-In

8:30 – 8:45am

OPENING REMARKS w/ Bonnie Schneider (IgAN Foundation)

8:45 – 10am

KEYNOTE SPEAKER: Adam Markel

10:05 – 10:50am

ABC OF IGAN w/ Dr. Jonathan Barratt

10:50 – 11am

BREAK

11:05 – 11:50am

UNDERSTANDING YOUR LABS w/ Dr. Dana Rizk

11:50am – 12:30pm

PATIENT PANEL I moderated by Gisela Delgado (IgAN Foundation)

12:30 – 1:30pm

LUNCH

Afternoon includes (3) Breakout Sessions. Sessions will be recorded and made available to all Spark attendees.

BREAKOUT I

1:35 – 2:20pm

CARE PARTNER PANEL w/ Alena Riddick (IgAN Foundation)

1:35 – 2:20pm

COVID + IGAN w/ Dr. Bruce Julian

BREAKOUT II

2:25 – 3:10pm

HOW TO FIND YOUR KIDNEY DONOR w/ Harvey Mysel, Founder – Living Kidney Donors Network (LKDN)

2:25 – 3:10pm

KIDNEY BIOPSY EXPLAINED w/ Dr. with Jared Hassler

BREAKOUT III

3:15 – 4:00pm

DEMYSTIFYING CLINICAL TRIALS w/ Dr. Richard Lafayette

3:15 – 4:00pm

FINDING A  BALANCE : NUTRITION + IGAN w/ Lauren Levy (MS, RDN, LD, CSR) + Anthony Valentine (Founder, Cukebook)

4:00 – 4:10pm

BREAK

4:15 – 5:00pm

PATIENT PANEL II moderated by Gisela Delgado (IgAN Foundation)

5:00 – 5:15pm

CLOSING REMARKS w/ Bonnie Schneider (IgAN Foundation)

6:30 – 10pm

AFTERPARTY AT THE WILDHORSE (TRANSPORTATION PROVIDED)

***This agenda is subject to change. Final details will be shared with all registrants.

FAQs

You are not alone in your diagnosis of IgA Nephropathy. SPARK is the only conference dedicated to the IgA Nephropathy community hosted by The IgA Nephropathy Foundation for IgA Nephropathy patients and their families to learn about the disease, living with the disease and being a caregiver for those with the disease.  

Registration is $150/per room [double occupancy] Each additional guest past double occupancy is an additional $25/per person for SPARK registration. Every guest must be registered to participate. All rooms have been negotiated based off double occupancy. If you are traveling alone it is the same price.
[STAYING IN SAME ROOM up to (2) nights MAX]

EXAMPLE
1 GUEST – $150
2 GUESTS – $150
3 GUESTS – $175
4 GUESTS – $200

  • Hotel Accommodations based on (double occupancy) for up to (2) Nights Each additional guest past double occupancy is an additional $25/per person for SPARK registration. Every guest must be registered to participate.
  • Welcome to SPARK NASHVILLE Swag Kit: Lanyard, Badge, Notebook, Pen, T-Shirt, Bag, and more!
  • Access to all Spark Sessions
  • ALL MEALS [Sunday, July 24th Welcome Dinner + Reception, Monday, July 25th Breakfast, Lunch and Dinner. PLUS SPARK EXCLUSIVE AFTER PARTY at Wildhorse Saloon.

All attendees are required to be fully vaccinated to attend SPARK 2022 in person.
*Individuals are defined as fully vaccinated fourteen (14) days after getting their final dose of a COVID19 vaccine.
Only those unvaccinated individuals who have been granted a reasonable accommodation for legally protected reasons will be able to attend the meeting in person. Additionally, in line with CDC guidelines, all attendees will be required to wear a mask throughout the duration of the event and when not actively eating or drinking.
Meeting attendees will receive additional communication closer to the event date clearly detailing requirements regarding COVID-19 diagnostic testing as well as requirements for completing daily health attestation while attending the event.

You are encouraged to attend as many as possible.

No. This year the event will be in person only.

Medical exemptions/accommodations for the COVID-19 vaccine will be considered if the person provides a written certification by a licensed, treating medical provider, such as a physician (MD or DO), nurse practitioner (NP), or physician’s assistant (PA), affirming one of the following: 1. 2. 3. The applicable CDC contraindication for the COVID-19 vaccine, or The applicable contraindication found in the manufacturer’s package insert for the COVID-19 vaccine, or A statement that the physical condition of the person or medical circumstances relating to the person are such that immunization is not considered safe, indicating the specific nature and probable duration of the medical condition or circumstances that contraindicate immunization with the COVID-19 vaccine.

Yes! We want as many patients and patient families to attend SPARK. Please share your story and email us at info@igan.org.

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765