Virtual Agenda
Spark 2021 Agenda
What is SPARK? SPARK is a 1-day symposium hosted by The IgA Nephropathy Foundation for IgA Nephropathy patients and their caregivers to learn about the disease, living with the disease and being a caregiver for those with the disease. It promises to be an information packed event with plenty of time for mingling with others and sharing your stories.
For Spark 2021 we are going to stay virtual in an effort to protect our patients during the COVID-19 crisis.
Please view the Virtual Spark Agenda below, detailing the day and stay tuned for more information about the sessions, speakers and registration.
Saturday August 21 2021 9:45AM - 5:00PM
9:45am – Opening Remarks & Housekeeping
Lenny Erlanger, President of IgA Nephropathy Foundation
Bonnie Schneider, Founder & Executive Director of IgAN Foundation
Carrie Enicke, Vice President of Industry Relations & Programs, IgANF
10:00am – 11:00am – Diagnosed with IgAN. Now what?
Dr. Jonathan Barratt, University of Leicester UK
11:00am – 11:30am – The Importance of Clinical Trials in IgA Nephropathy
Dr. Richard Lafayette, Stanford University
11:30am – 12:30pm – Breakout sessions
Patient Journeys & Stories – IgA Nephropathy Patients
Having Your Donor Find You – Harvey Mysel, Living Kidney Donors Network
Understanding Your Labs & Biopsy Report – Dr. Dana Rizk, University of Alabama Birmingham
12:30pm – 1:30pm – LUNCH BREAK
1:30pm – 2:30pm – Breakout sessions
Pregnancy & IgAN – Whitney Simmons, MSN, APRN-CNP – IgAN Patient
Pediatric IgAN – Dr. Annabelle Chua, Duke University
Anemia, Gout & Other Common Conditions of CKD & IgAN – Dr. Li Li Hsiou, Brigham & Women’s Hospital Boston, MA
2:30pm – 3:30pm – Nutrition & IgA Nephropathy
Dr. Kam Kalantar, University of California Irvine
3:30pm – 4:30pm – Breakout sessions
Patients & Caregivers “Surviving & Thriving” – Lynn Bartrum, The Estuary
Dialysis “Home vs In Center, Hemo vs Peritoneal” – speaker TBD
4:30pm – Closing Remarks
If you have any suggestions for breakout that you would like to hear, please email carrie@igan.org
7:30pm – 8:15pm – Understanding Your Lab Results
Dr. Dana Rizk, Medical Director for Clinical Trials at University of Alabama
8:15pm – 9:00pm – Alnylam
Session Schedule
Register Here
7:30pm – 9:00pm – Having Your Donor Find YOU!
Harvey Mysel, Living Kidney Donors Network
Session Schedule
Register Here
7:30pm – 8:15pm – Caregivers “Self Care: Are You Putting Your Own Oxygen Mask on First?”
Lynn Bartrum, Integrative Life Coach
MAT, Integrative Life Coach
The Estuary, Nashville, TN
8:15pm – 9:00pm – Otsuka/Visterra
Session Schedule
Register Here
7:30pm – 8:15pm – – Patients “Surviving and Thriving”
Danielle Gilbert, Holistic Health Coach
Jessica Kerske, Integrative Life Coach
The Estuary, Nashville, TN
Session Schedule
Register Here
7:30pm – 8:15pm – – Campfire Talk with the IgAN Foundation Leadership Team
Past Events
7:30pm – 8:15pm – Thriving Through Food
Emma Ryan, Integrative Health Coach
8:15pm – 9:00pm – Omeros
Session Schedule
Register Here
Wednesday, July 29
7:30pm – 8:15pm – How to Find a Donor Through Social Media & Marketing
Gisela Delgado
8:15pm – 9:00pm – Transplant Process & Living With Your Transplant Q&A
Stuart Miller, Moderator
Patient Panel
Session Schedule
Register Here
7:30pm – 8:15pm – Be Your Own Kidney Advocate
Alex Berrios, Jr. & Whitney Simmons, BSN, RN
8:15pm – 9:00pm – Retrophin
Session Schedule
Register Here
7:30pm – 8:15pm – What is a Kidney Biopsy?
Dr. Jared Hassler, Renal Pathologist & Associate Professor at Temple University
8:15pm – 9:00pm – Chinook
Session Schedule
Register Here
7:30pm – 8:15pm – History of IgAN
Dr. Bruce Julian, Professor Emeritus at University of Alabama
8:15pm – 9:00pm – Calliditas
Session Schedule
Register Here
Special Thanks to our Firework Sponsor
Special Thanks to our Sparkler Sponsors
