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Virtual Agenda

Spark 2021 Agenda

What is SPARK? SPARK is a 1-day symposium hosted by The IgA Nephropathy Foundation for IgA Nephropathy patients and their caregivers to learn about the disease, living with the disease and being a caregiver for those with the disease. It promises to be an information packed event with plenty of time for mingling with others and sharing your stories.

For Spark 2021 we are going to stay virtual in an effort to protect our patients during the COVID-19 crisis.

Please view the Virtual Spark Agenda below, detailing the day and stay tuned for more information about the sessions, speakers and registration.

Saturday August 21 2021 9:45AM - 5:00PM

9:45am – Opening Remarks & Housekeeping

Lenny Erlanger, President of IgA Nephropathy Foundation

Bonnie Schneider, Founder & Executive Director of IgAN Foundation

Carrie Enicke, Vice President of Industry Relations & Programs, IgANF

10:00am – 11:00am – Diagnosed with IgAN.  Now what?

Dr. Jonathan Barratt, University of Leicester UK

11:00am – 11:30am – The Importance of Clinical Trials in IgA Nephropathy

Dr. Richard Lafayette, Stanford University

11:30am – 12:30pm – Breakout sessions

Patient Journeys & Stories – IgA Nephropathy Patients 

Having Your Donor Find You – Harvey Mysel, Living Kidney Donors Network

Understanding Your Labs & Biopsy Report – Dr. Dana Rizk, University of Alabama Birmingham

12:30pm – 1:30pm – LUNCH BREAK

1:30pm – 2:30pm – Breakout sessions

Pregnancy & IgAN – Whitney Simmons, MSN, APRN-CNP – IgAN Patient

Pediatric IgAN – Dr. Annabelle Chua, Duke University

Anemia, Gout & Other Common Conditions of CKD & IgAN – Dr. Li Li Hsiou, Brigham & Women’s Hospital Boston, MA

2:30pm – 3:30pm – Nutrition & IgA Nephropathy

Dr. Kam Kalantar, University of California Irvine

3:30pm – 4:30pm – Breakout sessions

Patients & Caregivers “Surviving & Thriving” – Lynn Bartrum, The Estuary

Dialysis “Home vs In Center, Hemo vs Peritoneal” – speaker TBD

4:30pm – Closing Remarks

If you have any suggestions for breakout that you would like to hear, please email carrie@igan.org

Wednesday, August 12

7:30pm – 8:15pm – Understanding Your Lab Results

Dr. Dana Rizk, Medical Director for Clinical Trials at University of Alabama

8:15pm – 9:00pm – Alnylam
Session Schedule
Register Here
 

Wednesday, August 19

7:30pm – 9:00pm – Having Your Donor Find YOU!

Harvey Mysel, Living Kidney Donors Network
Session Schedule
Register Here
 

Wednesday, August 26

7:30pm – 8:15pm – Caregivers “Self Care: Are You Putting Your Own Oxygen Mask on First?” 

Lynn Bartrum, Integrative Life Coach

MAT, Integrative Life Coach

The Estuary, Nashville, TN

8:15pm – 9:00pm – Otsuka/Visterra
Session Schedule
Register Here
 

Wednesday, September 2

7:30pm – 8:15pm – – Patients “Surviving and Thriving”

Danielle Gilbert, Holistic Health Coach

Jessica Kerske, Integrative Life Coach

The Estuary, Nashville, TN
Session Schedule
Register Here

 

Wednesday, September 9

7:30pm – 8:15pm – – Campfire Talk with the IgAN Foundation Leadership Team

Session Schedule
Register Here

 

 

Past Events

Wednesday, August 5

7:30pm – 8:15pm – Thriving Through Food

 Emma Ryan, Integrative Health Coach

8:15pm – 9:00pm – Omeros
Session Schedule
Register Here

 

Wednesday, July 29

7:30pm – 8:15pm – How to Find a Donor Through Social Media & Marketing

Gisela Delgado

8:15pm – 9:00pm – Transplant Process & Living With Your Transplant Q&A

Stuart Miller, Moderator

Patient Panel
Session Schedule
Register Here
 

Wednesday, July 22

7:30pm – 8:15pm – Be Your Own Kidney Advocate

Alex Berrios, Jr. & Whitney Simmons, BSN, RN

8:15pm – 9:00pm – Retrophin
Session Schedule
Register Here

 

Wednesday, July 15

7:30pm – 8:15pm – What is a Kidney Biopsy?

Dr. Jared Hassler, Renal Pathologist & Associate Professor at Temple University

8:15pm – 9:00pm – Chinook
Session Schedule
Register Here

 

Wednesday, July 8

7:30pm – 8:15pm – History of IgAN

Dr. Bruce Julian, Professor Emeritus at University of Alabama

8:15pm – 9:00pm – Calliditas
Session Schedule
Register Here
 
 

Special Thanks to our Firework Sponsor 

 

Special Thanks to our Sparkler Sponsors

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765