Whether you or someone you know has IGAN or HSP you have come to the right place. We are a volunteer based organization with a goal to not only fund research but to help families along their journey. Please be sure to fill out the patient registry below so we can keep you up to date on clinical trials, research and IGAN news.
IGA Nephropathy Foundation of America has as its primary objective the eradication of this chronic kidney disease while also addressing the many problems faced by the patients and their families. As a recognized 501(C) (3) non-profit, public health organization, we are committed to research for a cure, public education and patient service.
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- June 9, 2019
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- August 19, 2019
My name is Bonnie Schneider and I am the founder of the IGA Nephropathy Foundation of America. In 2004 our son Eddie was diagnosed with IGAN at age 13. When we were told the diagnosis the first thing we did was go on the Internet and search for help and support. That moment was as devastating as his diagnosis because there was nothing out there to help us get thru this new chaos, which was now our new normal.
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