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Ambassador Program

The IgA Nephropathy Ambassador Program

IgA Nephropathy remains poorly understood. For far too many people, the journey with IgA Nephropathy is a struggle, often filled with misinformation, sometimes years of medical uncertainty, or not knowing where to turn. It’s easy to feel alone and isolated. We are set to change this!

With the launch of our Ambassador Program in early 2023, we’ve been able to extend the voice and geographic reach of the Foundation across the U.S. and globally – harnessing the power of our IgA Nephropathy community to support, inspire, engage, and activate patients and caregivers, near and far.

Through this program, our trained ambassadors serve as our “boots on the ground,” helping to advance our mission and raise critical awareness of IgA Nephropathy, grow our IgAN family, push for better treatments, and reach patients and caregivers earlier in their journey, empowering them to take charge of their kidneys and overall health.

Click here to find an ambassador near you

Ambassadors rally around four core focus areas:

Peer support

Awareness & education

Community outreach & partnerships

Patient empowerment & engagement

At the heart of the Ambassador program are our stories, connections and a shared vision to raise awareness of IgAN and meet patients and their loved ones earlier in their journey to engage and empower them with vital information and support.

Become an IgA Nephropathy Foundation Ambassador

Are you a born leader? Want to inspire others? Do you believe deeply in our mission? The IgA Nephropathy Foundation is currently looking for self-motivated, dedicated volunteer leaders affected by IgAN to apply to be ambassadors for the organization.

Ambassadors will receive in-person training to gain skills and information to serve as patient advocates, educators, engage with stakeholders in their communities, and offer peer support to those affected by IgAN locally, thereby extending the impact we can make.

We are stronger together, and no one should face IgA Nephropathy alone. Our training will equip our Ambassadors with the skills, how-to resources, and template materials to:

  • Share their stories to inspire and give hope to others
  • Raise awareness of IgA Nephropathy
  • Educate and engage others, including nephrology care providers and legislators
  • Provide peer support and vetted tools and resources
  • Empower patients to advocate for themselves and for better treatments

How to apply

Please complete the online application found here or send it as an attachment via email to kate@igan.org. Applicants will then be invited to an informal 20-—to 30-minute interview over Zoom with one of our program co-chairs and/or staff.

Deadline

We will hold our next in-person training on January 24-26, 2025. To be considered, please submit applications no later than October 30, 2024—earlier is better. We will offer subsequent opportunities to apply to the program and be part of this initiative.

Learn more

For more information about the Ambassador Program, read our program description and ambassador job description or send an email to info@igan.org

Click here to find an ambassador near you

Ambassador Program

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Program Application

Download Application

Apply Online


2. What is the highest degree or level of school you have completed? *
3. How long ago were you diagnosed with IgA Nephropathy? *
4. Which best describes you: *
Other
5. What is the current stage of your kidney disease? *
6. What steps have you or are you taking to manage IgA Nephropathy? (Please check all that apply.) *
Other
10. How easy or difficult is it for you to explain IgA Nephropathy to people unfamiliar with the condition? *
13.Which of the following activities interests you most? (Please select your top 3) *
Other
14.Are you willing to travel to SPARK? *
15.What amount of time are you comfortable giving to the Ambassador Program? *
Other (feel free to note, hours available, certain times of the year when you may have more time available, etc.)
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(848) 298-4618

PO Box 1322 Wall, NJ 07719

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765