For far too many people, the journey with IgA Nephropathy (IgAN) is a struggle, often filled with misinformation, sometimes years of medical uncertainty, or the feeling of not knowing where to turn. The IgA Nephropathy Foundation was born in 2004 to help fill this void. As the only organization serving patients with IgAN and their care partners, we are steadfast in our commitment to be the go-to source for information, education, support, and hope.
The Foundation began with concerned parents, relatives, and friends determined to make an immediate impact. When Bonnie Schneider’s son was diagnosed with IgAN at age 13, she had nowhere to turn for resources and patient support. She and her husband launched the Foundation from their kitchen table in hopes of helping others like them and funding further research on this rare, chronic kidney disease.
The future is bright for people living with IgA Nephropathy.
It’s an exciting time of discovery and new treatments. To date, we have awarded over $1,000,000 in fellowship grants to Columbia University and the University of Alabama at Birmingham (UAB) for research into the causes and a cure for IgA Nephropathy. (More info on research papers published via this funding can be found HERE.)
Committed to finding a cure
The Foundation is committed to research for a cure, public education, and patient services. Our growing IgAN family is a testament to the need for our work and the strides we’ve been able to make. Make no mistake: We are going to find a cure. It may take time, but we will find it. As we work toward this goal, we are here for you and your family at every step of your journey.
