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Podcasts

Welcome to IgAN Journey – the IgA Nephropathy Foundation’s podcast. Here, we share information, tips, stories, and inspiration for living with IgAN. Using the power of our growing patient community, we are focused on funding research and building a network of support and ultimately finding a cure.

To learn more about IgAN, to get involved or help fuel our mission with financial support, explore our website.


Episode 8: IgAN Mindful Moments — Guided Sound Meditation Session

September 6, 2023

Join Franck Raharinosy as he guides you through meditation by immersing yourself in sound, focusing on your breath and being in the present. 

Listen NowEpisode 8: IgAN Mindful Moments — Guided Sound Meditation Session

Episode 7: Finding Your Zen, Tools for Meditating and Regaining Calm

September 6, 2023

In this episode, we are joined by Fraqnck Raharinosy, an expert in sound meditation who shares how to meditation techniques can help, and how to integrate them into your daily life.

Listen NowEpisode 7: Finding Your Zen, Tools for Meditating and Regaining Calm

Episode 6: Tips for Kidney Friendly Eating

July 13, 2023

So it’s important that we consume foods that are friendly to our kidneys and easy for the body to digest and breakdown.

Listen NowEpisode 6: Tips for Kidney Friendly Eating

Episode 5: The Importance of Connection

May 12, 2023

Celebrating Mother’s Day and IgAN Awareness Day with Two Moms

Listen NowEpisode 5: The Importance of Connection

Episode 4: New Treatments and Research for IgAN

March 30, 2023

The Future is Bright

Listen NowEpisode 4: New Treatments and Research for IgAN

Episode 3: Coping Post-Transplant

February 28, 2023

Part 3 of our 3 part series On Coping and Mental Health at Different Stages of IgAN

Listen NowEpisode 3: Coping Post-Transplant

Episode 2: Mental health matters

February 28, 2023

Part 2 of our 3 part series on mental health and coping at different stages of IgAN

Listen NowEpisode 2: Mental health matters

Episode 1: Tuning into your mental wellness and coping

February 28, 2023

Part 1 of our three-part series on minding your mental health along the IgAN journey

Listen NowEpisode 1: Tuning into your mental wellness and coping

IgAN Journey Trailer

January 29, 2023

Whether you or someone you love has been diagnosed with IgA Nephropathy, you are in the right place for information, support and encouragement.

Listen NowIgAN Journey Trailer
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(848) 298-4618

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PO Box 1322 Wall, NJ 07727

© 2023 All Rights Reserved.

May 14, Sunday: Mother’s Day & IgA Nephropathy Awareness Day

The IgAN Foundation was sparked by a mother’s love and has grown into a community sharing crucial resources and working toward a cure. This day kicks off a week of celebrating the IGA Nephropathy family all week!

May 15, Monday: Mindfulness

IgA Nephropathy can be challenging and mindfulness is an important part of caring for yourself. Take a moment today and implement a mindfulness practice, meditate, or take a few moments in reflection to check in with yourself.

May 16, Tuesday: Share Your Story

On this day, the Foundation will share the video with Warrior stories compiled (submit yours here if you haven’t yet). We encourage you to also share your own photos and videos from moments along your journey!

May 17, Wednesday: Wellness

What are you doing to feel well today? IgA Nephropathy can sometimes make life feel uncontrollable, but there are some things we can control, for example:

  • Enjoyable movement (a stretch, a walk, dancing to a favorite song)
  • Eating food that’s right for us individually
  • Checking in with ourselves
  • Meditating

May 18, Thursday: Thank those who care

Between care teams, care partners, and medical providers, a lot goes into the care that sustains us as we live with IgA Nephropathy. Take this opportunity to express your appreciation to them!

May 19, Saturday: Rally cry

When the IgA Nephropathy Foundation was created, there were no resources to treat IgA Nephropathy. Now, there are 2 approved FDA treatments and many clinical trials in the works. Our community is strong and full of hope— here’s to even more progress in the future!

May 20, Saturday: Celebration! 

We’ll be hosting an in-person celebration (details to come). We’ll miss you if you can’t make it, but please take the time to celebrate however works for you — wearing your IgAN Foundation sunglasses, spending time with loved ones, etc. — just be sure to share a photo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765