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Tools & Resources

As a part of our patient-centric mission focused on finding a cure for IgA Nephropathy and supporting IgAN Warriors, the resources below are designed to help equip and empower you through every part of your treatment journey.

Table of Contents

  • Patient Guides
  • Mental Health & Coping
  • Pregnancy and Family Planning
  • Navigating Treatment Options
  • Clinical Trials
  • Recommended Resources By Stage 

Patient Guides

IgA Nephropathy Guide

Your Guide to Managing and Living Well with the Condition

Use this guide to learn about IgA Nephropathy, including common tests used to check your kidney health, what to look for and expect at different stages and various treatment options. You’ll also find tips for coping, questions to ask, worksheets to help track test results, medications and how you feel, and resources to help.

Download Now
  • IgAN Booklet
  • Tracking Your Treatment Worksheet
  • Symptoms and Wellness Worksheet
  • Go-To Self-Care Worksheet
  • Making Treatment Decisions Worksheet
  • Coping and Self-Care Worksheet

Mental Health & Coping

Learn More

Coping & Self-Care Worksheet

Get The Worksheet Here

Living With IgA Nephropathy

Get The Handout Here
  • Mental Health & Common Stressors
  • Mental Health & Coping Self-Check & Tips 
  • Questions to Ask & Resources to Help

Pregnancy and Family Planning

Learn More

Learn about High-risk pregnancy and read our 10 Tips for Pregnancy and Family Planning, which was developed with input from people who’ve been through the journey of thinking about or having a baby. 

High-Risk Pregnancy

Get The Worksheet Here

10 Tips for Pregnancy/Family Planning

Get The Handout Here

Pregnancy and IgAN

Get The Handout Here

For more information

Check back for more information and resources
Become a member of the IgA Nephropathy Foundation if you aren’t already
Join our online Facebook support community specifically for Women and Pregnancy
IgA Nephropathy Support For Women And Pregnancy

Navigating Treatment Options

Learn More

In general, managing IgA Nephropathy may include:

Lifestyle changes

To keep you healthy overall and lower blood pressure and stress on the kidneys

Medications

To lower blood pressure and/or protein in the urine and manage any issues that can develop from worsening kidney disease (for example, anemia, fluid buildup)

Learn More

Clinical Trials

To find new treatments specifically for IgAN that target the source of the disease and prevent kidney damage

Clinical Trials

Learn More

The IgA Nephropathy Foundation is working with the partners below to provide our patients access to breakthrough clinical trials. Patient participation is the key to finding treatment and the ultimate cure for IgA Nephropathy. Read more about each trial below to see if you are eligible.

Current Clinical Trials

Prevail
Nefxtend
IMAGINATION
ALXN1210-IgAN-320 Study
Q32
RAINIER
ASSIST Study
BEYOND Study
VISIONARY: A Phase 3 clinical trial
ORIGIN 3 Phase 3 Clinical Trial

Recommended Resources By Stage

Stage 1-3

  • Navigating Treatment Decisions
  • What is a Kidney Biopsy (see video below)
  • Understanding Your Lab Results & Alnylam (see video below)
  • Clinical Trials
  • The IgAN Cookbook
  • Living with IgA Nephropathy

Stage 4-5

  • How to Find a Kidney Donor through Social Media & Living with your Kidney Transplant (see video below)
  • Having Your Kidney Donor Find You (see video below)
  • The IgAN Cookbook

Living with your transplant

Donate
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(848) 298-4618

PO Box 1322 Wall, NJ 07719

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References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765