Our leadership team is passionate and committed to finding better alternatives and treatments for all who have IgAN. We are dedicated to this task as we all have IgAN within our families.
Meet our dynamic leadership team!
In 2004 Bonnie’s son Eddie was diagnosed with IgAN and after finding a lack of information available and hearing that there was no ongoing research to find a cure, she quit her job in marketing and started the IgA Nephropathy Foundation with her husband, Ed. Bonnie works full time as Director of the Foundation.
Carrie is a warrior Mom who lives with her husband and daughter in North Carolina. Carrie’s 16 year old daughter Lillie has IgAN non responsive to treatment. It is Carrie’s mission to help change Lillie’s future as well as the patients we serve.
Stuart and his wife live in Georgia. Stuart has IgAN and had a living donor transplant from his wife Carole through the paired exchange program. Stuart leads the foundation’s strategic planning ensuring we meet and exceed our goals for success.
Gisela was diagnosed with IgA Nephropathy at the age of 14. Ultimately it lead to to her kidney failure at the age of 38 requiring a kidney transplant. Luckily, she was able to avoid dialysis and received a pre-emptive transplant from her brother. Today she wears many hats with the Foundation but her primary focus is developing the brand to be the trusted resource for all IgA Nephropathy patients and caregivers.
Whitney works as a full time nurse, attends school and raises her young family. Whitney has IgAN stage 2-3. Whitney’s goal is to slow the progression of our disease by helping us reach out to Nephrologists to educate them and make sure patients know these trials not only exist but they have a choice in the direction they choose to take.
Alex lives in Kentucky with his family. Alex had a kidney transplant 13 years ago and his transplanted kidney has rejected. He just started back on hemodialysis 3 days a week.. Alex has broadened his scope of work to the foundation helping all those faced with the decisions of the “Transplant Process”.