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IgA Nephropathy Awareness Day

On May 14th 20 years ago, Bonnie Schneider founded the IgA Nephropathy Foundation after her son’s diagnosis to create a support hub for people living with IgA Nephropathy.

The IgA Nephropathy Foundation hopes this day will bring our community together to celebrate one another and raise more awareness for early diagnosis and treatment.  


This year, May 14, 2023 falls on Mother’s Day, and as it was a mother’s love that sparked the Foundation’s creation, we’re celebrating family—the family you’re born with and the family you find—all week long, from Sunday, May 14 to Saturday, May 20, 2023. We invite you to join us for a week of meaningful moments OR pick your day(s) to get involved to celebrate the 2nd Annual IgAN Aware Day.

Get involved to make everyone #IgANAware

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IgAN Warrior

Share about IgA Nephropathy with your community using our social media toolkit.

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General Information for the Public

Get the facts about IgA Nephropathy and take the risk quiz.

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Find information you can share with your IgA Nephropathy patient Warriors.

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Find an Event Near You

In 2023, May 14 received official recognition as Iga Nephropathy Awareness Day in Texas, Illinois, and Oklahoma.

May 14, 2022, received official recognition as IgA Nephropathy Awareness Day in the U.S. Congress and in these states:

  • New Jersey
  • Washington, D.C.
  • Wisconsin

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(848) 298-4618

(732) 681-3462

PO Box 1322 Wall, NJ 07727

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May 14, Sunday: Mother’s Day & IgA Nephropathy Awareness Day

The IgAN Foundation was sparked by a mother’s love and has grown into a community sharing crucial resources and working toward a cure. This day kicks off a week of celebrating the IGA Nephropathy family all week!

May 15, Monday: Mindfulness

IgA Nephropathy can be challenging and mindfulness is an important part of caring for yourself. Take a moment today and implement a mindfulness practice, meditate, or take a few moments in reflection to check in with yourself.

May 16, Tuesday: Share Your Story

On this day, the Foundation will share the video with Warrior stories compiled (submit yours here if you haven’t yet). We encourage you to also share your own photos and videos from moments along your journey!

May 17, Wednesday: Wellness

What are you doing to feel well today? IgA Nephropathy can sometimes make life feel uncontrollable, but there are some things we can control, for example:

  • Enjoyable movement (a stretch, a walk, dancing to a favorite song)
  • Eating food that’s right for us individually
  • Checking in with ourselves
  • Meditating

May 18, Thursday: Thank those who care

Between care teams, care partners, and medical providers, a lot goes into the care that sustains us as we live with IgA Nephropathy. Take this opportunity to express your appreciation to them!

May 19, Saturday: Rally cry

When the IgA Nephropathy Foundation was created, there were no resources to treat IgA Nephropathy. Now, there are 2 approved FDA treatments and many clinical trials in the works. Our community is strong and full of hope— here’s to even more progress in the future!

May 20, Saturday: Celebration! 

We’ll be hosting an in-person celebration (details to come). We’ll miss you if you can’t make it, but please take the time to celebrate however works for you — wearing your IgAN Foundation sunglasses, spending time with loved ones, etc. — just be sure to share a photo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765