Welcome to your IgAN family.
Whether you or someone you love has been diagnosed with IgA Nephropathy, you have come to the right place. You are not alone.
By patients, for patients
The IgA Nephropathy Foundation’s mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community, we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.
Latest News & Resources About IgAN
Ambassador Program
The IgA Nephropathy Foundation Ambassador Program will bring together and train a select group of inspired patients and caregivers.
Guides & Fact Sheets
Use this guide to learn more about IgA Nephropathy, including common tests used to check your kidney health, what to look for and expect at different stages, and various treatment options.
International IgAN Network
Learn more about the International IgA Nephropathy Network. For Clinicians and Patients with IgA Nephropathy.
IgAN Cookbook
We are so pleased to offer our first-ever cookbook devoted to patients and caregivers of IgA Nephropathy.
“Knowing you’re not alone is very powerful. So is knowing it’s not fully out of my control and I can take steps every day to help.”
CHRIS
IgA Nephropathy Facts
What is IgA Nephropathy?
IgA Nephropathy (IgAN) is a rare, autoimmune disease that attacks the kidneys. It affects how blood is filtered in the small blood vessels of the kidneys. IgAN occurs when an abnormal protein damages the filtering unit (glomerulus) inside the kidneys. It is estimated that 20-40% of the people who have IgAN will develop end-stage kidney disease, which means they will need dialysis or kidney transplantation to survive.
How is IgA Nephropathy Diagnosed?
The first sign of IgAN is often blood in the urine. Should this occur, you should immediately consult your doctor.
How is IgA Nephropathy Treated?
There is no current cure for IgAN and that is why the IgA Nephropathy Foundation was founded.
Faces of IgA Nephropathy
Our mission is to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.As a patient run organization, we will work together with the hope of finding better treatment options and ultimate cure. By patients, for patients.