Each Congress, the IgA Nephropathy Foundation advocates for federal legislation to improve treatment options, foster innovation, and increase research funding for IgAN patients and the kidney community.
Our core policy priorities center on:
- Organ Donation and Transplantation: Reducing barriers to kidney donation and streamlining the organ transplantation process.
- Health Equity and Disparities: Addressing health disparities and inequities in kidney disease treatments, with a focus on reducing disparities related to race, ethnicity, socioeconomic status, and geographic location.
- Federal Investments in Rare Kidney Disease Treatment, Innovation, and Care: Revolutionizing care for IgAN and other rare kidney diseases through investments in research and diagnostics, potential treatments, and programming.
Sharing Your Story
Having the opportunity to share my story as a patient and spread awareness of IgA Nephropathy at Capitol Hill has been one of the most meaningful experiences of my life.
— Cindy Ross | Mississippi IgA Nephropathy Foundation Ambassador
Feeling Empowered
For me doing Hill Day’s was the most empowering thing I did when I was first learning about my disease. I was able to tell my story to lawmaker’s and their staff; the most powerful people in the country if you think about it. That alone felt great, telling these people about the hardships I had faced, and about how they had the ability to help me.
— Carlos Cristi | Coordinator of Legislative Advocacy
