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Celebrating Our Community

IgA Nephropathy Awareness Day and Spirit Week are a celebration of you. This year marks 22 years of the Foundation, and everything we have built is rooted in your strength, your stories, and the way you show up for one another.

This community is filled with resilience, connection, and real hope. Whether you are living with IgAN or caring for someone who is, your voice matters. We invite you to share your journey and reflect on how the Foundation has supported you along the way.

Explore the IgAN Community Social Toolkit for ideas and inspiration, and join us throughout the week as we come together to celebrate, raise awareness, and honor the power of this community.


Use Our Social Tool Kit

Celebrate With Us

The toolkit includes ready-to-use social media copy, suggested hashtags and handles, Spirit Week details, and downloadable graphics to make sharing easy across your channels. Click here to access the toolkit.


IgAN Hope Patient Registry

Join the IgAN Hope Patient Registry to help advance research—getting started is quick and secure. As part of the survey, you can enter your lab results or connect your Electronic Health Record (EHR), and save your progress at any time.


Join in 4 easy steps:
STEP 1 Sign up to request access
STEP 2 Create password
STEP 3 Log in to complete consent process
STEP 4 Complete survey



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If you’re not a member yet, join us here! Becoming an IgAN Foundation member is free and keeps you updated on the latest resources, publications and events while granting you access to: 

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Spirit Week Details

Sunday, May 12: Where We Were and Where We Are 
The Foundation is celebrating how far the community has come in the last 20 years by comparing where we’ve been with where we are today. We encourage our IgAN family to highlight key moments from your IgAN journeys and celebrate how far you’ve come on the IgAN Day Kudo board or social media!

Monday, May 13: Mind-Body Connection 
IgA Nephropathy can be challenging, and cultivating a strong mind-body connection can help with self-care. We challenge you to take a moment to do one thing that makes you feel connected to your body and grounded, such as mindful meditation, enjoyable movement, eating a meal that fits your needs, or reflecting and checking in with yourself.

Tuesday, May 14: IgAN Awareness Day 
Over the last 20 years, the Foundation has grown our IgAN family, developing and sharing crucial resources. With 2 approved FDA treatments and many clinical trials in the works, our community is strong and full of hope! Today we celebrate everyone who has been a part of the Foundation’s 20-year #IgANjourney and invite anyone connected to IgAN to join us in working toward a cure, sharing support and celebrating a brighter future!

Wednesday, May 15: Risk Quiz
IgA Nephropathy affects Asian populations at a higher rate. The IgAN Foundation has worked to address this with our Risk Quiz and Facts Webpage for people of Asian descent. We urge our IgAN Family to share this Risk Quiz and raise awareness in their communities.

Thursday, May 16: Day of Gratitude
Support enables us to better manage life with IgAN. On this day, our community will honor anyone who has made life with IgAN better — whether that’s fellow Warriors, care partners, kidney donors, care teams, medical providers, or biological or found family. Please consider sharing a photo on Kudo or social media and thanking them for their support.

Friday, May 17: Looking Back, Moving Forward 
In the last 20 years, our IgAN Family has made tremendous strides in treatment, research, resources and support. We’re eager to continue advancing! We encourage everyone to reflect on Kudo or social media and post a milestone moment or Foundation benefit that sparks excitement or hope. That might mean new treatment options, attending an event, accessing Talkspace or Calm, or your own uplifting memory. Share what inspires you!

Saturday, May 18: Celebration Day
The future is bright! As we wrap up #IgANaware Spirit Week and embark on our year-long 20th Anniversary celebration, we invite our IgAN Family to gather in person! We’ll be hosting a celebratory event (details to come) — or you can find a list of events near you below.  Celebrate however you want — wearing your IgAN Day merch, spending time with loved ones, etc. — just be sure to share a photo on social media or Kudo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765