For Caregivers and Care Partners
If you care for or support someone with IgA Nephropathy, chances are you’ve worried and in search of answers and resources to help as you navigate the journey. It’s not easy. At times, it can be downright scary, especially given the uncertainty that comes with IgA Nephropathy and how it might progress. The burden of caregiving can be exhausting and isolating at times.
The good news is you are not alone. The IgA Nephropathy Foundation recognizes the vital role caregivers and care partners play in helping loved ones manage and live with IgA Nephropathy. As such, we have developed an array of resources to help. Read on to learn more…
Did you know?
- 1 out of 5 U.S. adults is a caregiver to a friend or family member with a health condition or disability
- 74% of caregivers/care partners say their loved one’s IgAN has had a significant emotional/ psychological impact on them.
- Less than half feel they have the “know-how and tools” to manage IgAN well
- 80% feel anxious/ burdened with worry
- Nearly 1 in 3 say their health has changed for the worse
- 44% feel alone/isolated
- 92% said family/ friends don’t understand IgAN
Source: Centers for Disease Control and Prevention, “Addressing Gaps in Support & Unmet Needs of IgAN Caregivers/Care Partners,” IgA Nephropathy Foundation Caregiver/Care Partner Survey, 2023
What You Can Do
Learn about IgA Nephropathy
Become a member and explore igan.org to get trusted information about IgA Nephropathy, what to watch for, and how to best manage it, including available clinical trials.
Find your support system and connect with other caregivers.
Our Virtual Care Partner Support Group meets the third Tuesday of every month from 7-8:30 p.m. ET. We’ve created a safe space to come together, share experiences and offer comfort and guidance. Check out our Patient + Care Partner Support page.
Remember, caregiving starts with self-care. Don’t neglect your own needs or push yourself to exhaustion.
Often times, caregivers and partners go-go-go and don’t realize they are running on empty. Use our worksheet to take stock of how you are coping and what you are doing – or not doing – to take care of yourself and refuel. Learn how to practice self-care to maintain your mental, physical and spiritual health.
Find positive ways to cope. Looking after yourself and your needs is an important part of the journey.
Read our 10 Tips for IgAN Caregivers and Care Partners for ways to keep perspective and tend to your own needs so you can be healthy and in a good place for your loved one.
