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Resources

6 Tips for Doing Your Own Research

August 1, 2022

It’s hard not to want to do your own research after learning you have a health condition like IgA Nephropathy. And while you should feel empowered to do your own …

Category: Resources
Read more6 Tips for Doing Your Own Research

Considering a Clinical Trial?

August 1, 2022

Clinical trials are a way to test whether a new drug, device, or another type of treatment is safe for use in humans if it has any side effects if …

Category: Resources
Read moreConsidering a Clinical Trial?

Thinking About What You Want From Treatment

August 1, 2022

When it comes to making a treatment decision for IgA Nephropathy, focusing on your priorities is important. Asking yourself “What do I most want to achieve from treatment?”, “How will …

Category: Resources
Read moreThinking About What You Want From Treatment

Understanding Your Treatment Options

July 13, 2022

Factors that  can shape treatment decisions Your provider might use a calculator of sorts to plug in information and help determine how quickly your condition may progress. This can also …

Category: Resources
Read moreUnderstanding Your Treatment Options

Navigating IgA Nephropathy Treatment Decisions

July 11, 2022
Category: Resources
Read moreNavigating IgA Nephropathy Treatment Decisions

What is a Kidney Biopsy?

May 19, 2020

Dr. Jared Hassler, Renal Pathologist & Associate Professor at Temple University BIO I was diagnosed with IgA nephropathy in 2001 after a routine health screening to qualify to serve as …

Category: Resources
Read moreWhat is a Kidney Biopsy?

Thriving Through Food

May 19, 2020

Emma Ryan, Integrative Health Coach BIO Hi! I’m Emma, founder of Emma Ryan Vitality Coaching and lover of people. I’m an integrative nutrition health coach, raw food chef, and plant …

Category: Resources
Read moreThriving Through Food

History of IgAN

May 19, 2020

Dr. Bruce Julian, Professor Emeritus at University of Alabama BIO Dr. Bruce A. Julian is Professor Emeritus in the Division of Nephrology, Department of Medicine, at the University of Alabama …

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Transplant Process & Living With Your Transplant Q&A

May 17, 2020

Stuart Miller, Moderator Patient Panel BIO Stuart is an advocate for NKF and an ambassador for AAKP. He was diagnosed with IgA Nephropathy in May of 2008. Making some lifestyle …

Category: Resources
Read moreTransplant Process & Living With Your Transplant Q&A

The IgAN Foundation Donate Life Series

March 28, 2020

April is National Donate Life Month and the IGA Nephropathy Foundation of America would like to encourage people to consider being a kidney donor. Just a few statistics,13 people die …

Category: Resources
Read moreThe IgAN Foundation Donate Life Series
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May 14, Sunday: Mother’s Day & IgA Nephropathy Awareness Day

The IgAN Foundation was sparked by a mother’s love and has grown into a community sharing crucial resources and working toward a cure. This day kicks off a week of celebrating the IGA Nephropathy family all week!

May 15, Monday: Mindfulness

IgA Nephropathy can be challenging and mindfulness is an important part of caring for yourself. Take a moment today and implement a mindfulness practice, meditate, or take a few moments in reflection to check in with yourself.

May 16, Tuesday: Share Your Story

On this day, the Foundation will share the video with Warrior stories compiled (submit yours here if you haven’t yet). We encourage you to also share your own photos and videos from moments along your journey!

May 17, Wednesday: Wellness

What are you doing to feel well today? IgA Nephropathy can sometimes make life feel uncontrollable, but there are some things we can control, for example:

  • Enjoyable movement (a stretch, a walk, dancing to a favorite song)
  • Eating food that’s right for us individually
  • Checking in with ourselves
  • Meditating

May 18, Thursday: Thank those who care

Between care teams, care partners, and medical providers, a lot goes into the care that sustains us as we live with IgA Nephropathy. Take this opportunity to express your appreciation to them!

May 19, Saturday: Rally cry

When the IgA Nephropathy Foundation was created, there were no resources to treat IgA Nephropathy. Now, there are 2 approved FDA treatments and many clinical trials in the works. Our community is strong and full of hope— here’s to even more progress in the future!

May 20, Saturday: Celebration! 

We’ll be hosting an in-person celebration (details to come). We’ll miss you if you can’t make it, but please take the time to celebrate however works for you — wearing your IgAN Foundation sunglasses, spending time with loved ones, etc. — just be sure to share a photo and tag us!

References

  • Hall, Y.N., Fuentes, E.F., Chertow, G.M. et al. Race/ethnicity and disease severity in IgA nephropathy. BMC Nephrol 5, 10 (2004). https://doi.org/10.1186/1471-2369-5-10
  • Kiryluk K, Li Y, Sanna-Cherchi S, Rohanizadegan M, Suzuki H, et al. (2012) Geographic Differences in Genetic Susceptibility to IgA Nephropathy: GWAS Replication Study and Geospatial Risk Analysis. PLoS Genet 8(6): e1002765. doi:10.1371/journal.pgen.1002765