When diagnosed with a rare disease, patients can find hope by connecting with people who understand their experience. Many patient-centered organizations address this need by providing community, education, and advocacy for those affected by specific diseases. One example is the IgA Nephropathy Foundation (IGAN), an organization dedicated to finding a cure for IgA Nephropathy (IgAN). Iowans recently …
Bonnie Schneider delivers keynote at ASN Kidney Week 2025 as Foundation debuts first research poster and hosts IgAN therapies forum.WALL TOWNSHIP, NJ, UNITED STATES, November 6, 2025 /EINPresswire.com/ — The IgA Nephropathy Foundation proudly marked a milestone presence at this year’s American Society of Nephrology (ASN) Kidney Week, held November 5–9 in Houston, Texas. Through a series …
We are proud to recognize Whitney Simmons and Kelly Chen, two incredible women serving on our Medical and Scientific Advisory Board (MSAB). Not only are they dedicated healthcare professionals, they are also living with IgAN themselves. Their voices bring real life patient experience together with clinical expertise to help shape better care, research, and advocacy …
Andrea’s Story For Andrea, IgA Nephropathy is not just a cause she supports, it is something she lives with every single day. This Kidney Awareness Month, Andrea Stup is channeling her personal journey into meaningful action by hosting a fundraiser at her restaurant, Memories Charcoal House, in Mt. Airy, Maryland. What began as a desire …
Patient Voice spoke with Ruchi Ambike about her search to find community after being diagnosed with a rare disease. “I had just started my master’s program in 2001 when a routine physical led me to be diagnosed with IgA nephropathy, a rare auto-immune disease of the kidneys. Honestly, I didn’t really worry about it at …
Expanding Global Support: IgA Nephropathy Foundation Launches Go Global Network to Connect and Empower IgAN Patients Worldwide. By expanding our network to Canada, we are building a stronger, more connected global community dedicated to advocacy, education, and support.” — Bonnie Schneider TORONTO, ONTARIO, CANADA, April 21, 2025 /EINPresswire.com/ — The IgA Nephropathy Foundation is proud to announce …
WALL TOWNSHIP, NJ, UNITED STATES, March 18, 2025 /EINPresswire.com/ — The IgA Nephropathy (IgAN) Foundation marks its 20th anniversary in 2024, celebrating two decades of groundbreaking efforts in research, patient advocacy, and community building. Founded in 2004 by Bonnie and Ed Schneider after their son’s IgAN diagnosis, the Foundation has grown into a global leader in supporting …
We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of patients with IgAN and nephrology care team members (nephrologists, physician assistants, nurse practitioners) will assess patients’ and nephrologists’ perceptions of communications between the two groups …
On December 20, 2023, TARPEYO received full FDA approval for the new indication to reduce the loss of kidney function in adults with IgA Nephropathy (IgAN) who are at risk for their disease getting worse. “This first-ever IgAN treatment to get a full approval based on kidney function represents a beacon of hope for the …
Ad hoc announcement pursuant to Art. 53 LR Read full press release here
SAN DIEGO, Feb. 23, 2024 (GLOBE NEWSWIRE) — Travere Therapeutics, Inc., (NASDAQ: TVTX) and CSL Vifor today announced that the European Medicines Agency’s (EMA) CHMP has recommended approval of sparsentan for the treatment of adults with primary IgA nephropathy (IgAN) with a urine protein excretion >1.0 g/day (or urine protein-to-creatinine ratio ≥0.75 g/g). IgAN is a rare kidney …
Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course for progression to ESKD. The aim of this Kidney Health Initiative projectwas toidentify surrogate end points that could serve as reliable predictors of a treatment’s …
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