Building community following a rare kidney disease diagnosis: Ruchi’s story
Patient Voice spoke with Ruchi Ambike about her search to find community after being diagnosed with a rare disease. “I had just started my master’s program in 2001 when a …
IgA Nephropathy Foundation Announces the Launch of Go Global Network to Support for IgA Nephropathy Patients Worldwide
Expanding Global Support: IgA Nephropathy Foundation Launches Go Global Network to Connect and Empower IgAN Patients Worldwide. By expanding our network to Canada, we are building a stronger, more connected …
IgA Nephropathy Foundation Celebrates 20 Years of Advocacy, Research, and Patient Support
WALL TOWNSHIP, NJ, UNITED STATES, March 18, 2025 /EINPresswire.com/ — The IgA Nephropathy (IgAN) Foundation marks its 20th anniversary in 2024, celebrating two decades of groundbreaking efforts in research, patient advocacy, and …
Travere and CSL Vifor Announce Sparsentan Receives Positive CHMP Opinion for the Treatment of IgAN
SAN DIEGO, Feb. 23, 2024 (GLOBE NEWSWIRE) — Travere Therapeutics, Inc., (NASDAQ: TVTX) and CSL Vifor today announced that the European Medicines Agency’s (EMA) CHMP has recommended approval of sparsentan for the treatment …
Novartis investigational iptacopan Phase III study demonstrates clinically meaningful and statistically significant proteinuria reduction in patients with C3 glomerulopathy (C3G)
Ad hoc announcement pursuant to Art. 53 LR Read full press release here
Calliditas Therapeutics announces full FDA approval of TARPEYO®
On December 20, 2023, TARPEYO received full FDA approval for the new indication to reduce the loss of kidney function in adults with IgA Nephropathy (IgAN) who are at risk …
Improving Patient-Provider Communications in IgA Nephropathy.
We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of …
IgAN Cookbook and Aware Day Press Release
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers …
IgA Nephropathy Foundation Announces Launch of Medical and Scientific Advisory Board
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of …
Igan Basics
There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many …
National Kidney Foundation’s and IgA Nephropathy Foundation’s Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on IgA Nephropathy
The NKF and IGANF conducted an EL-PFDD meeting on IgAN to inform the FDA on the patient perspective on living with this disease. Understanding the patient perspective will help the …
Ten Years Follow-up of STOP-IgAN Trial
Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over …
