We want to tell you about an important research collaboration between IgA Nephropathy Foundation and the National Kidney Foundation (NKF). This research will have two phases. First, separate surveys of …
The IgA Nephropathy Foundation Launches First-Ever Cookbook Ahead of IgAN Awareness Day The Second Annual ‘IgAN Aware Day’ brings attention to the need for earlier diagnosis and treatments; cookbook offers …
May 25, 2022 – The IgA Nephropathy Foundation (IGAN Foundation), a nonprofit dedicated to supporting patients with a rare autoimmune kidney disease called IgA Nephropathy, today announced its formation of …
There is a lot of technical language around IgAN and it can seem confusing and overwhelming when receiving a diagnosis for yourself or a loved one. You may have many …
The NKF and IGANF conducted an EL-PFDD meeting on IgAN to inform the FDA on the patient perspective on living with this disease. Understanding the patient perspective will help the …
Abstract The randomized, controlled STOP-IgAN trial in patients with IgA nephropathy (IgAN) and substantial proteinuria showed no benefit of immunosuppression added on top of supportive care on renal function over …
Abstract IgA nephropathy (IgAN) is an important cause of ESKD for which there are no approved therapies. A challenge for evaluating treatments for IgAN is the usual long time course …
Diagnosis of IgA nephropathy The diagnostic feature of immunoglobulin A (IgA) nephropathy (IgAN) is the substantial accumulation of IgA in the filtering structures (glomeruli) of the kidneys. When IgAN was …
The most common form of the kidney disease called glomerulonephritis is IgA nephropathy. Now a study published in the Journal of the American Society of Nephrology by researchers at the University of Alabama …
The IgAN Foundation was sparked by a mother’s love and has grown into a community sharing crucial resources and working toward a cure. This day kicks off a week of celebrating the IGA Nephropathy family all week!
IgA Nephropathy can be challenging and mindfulness is an important part of caring for yourself. Take a moment today and implement a mindfulness practice, meditate, or take a few moments in reflection to check in with yourself.
On this day, the Foundation will share the video with Warrior stories compiled (submit yours here if you haven’t yet). We encourage you to also share your own photos and videos from moments along your journey!
What are you doing to feel well today? IgA Nephropathy can sometimes make life feel uncontrollable, but there are some things we can control, for example:
Between care teams, care partners, and medical providers, a lot goes into the care that sustains us as we live with IgA Nephropathy. Take this opportunity to express your appreciation to them!
When the IgA Nephropathy Foundation was created, there were no resources to treat IgA Nephropathy. Now, there are 2 approved FDA treatments and many clinical trials in the works. Our community is strong and full of hope— here’s to even more progress in the future!
We’ll be hosting an in-person celebration (details to come). We’ll miss you if you can’t make it, but please take the time to celebrate however works for you — wearing your IgAN Foundation sunglasses, spending time with loved ones, etc. — just be sure to share a photo and tag us!
